[{"innerBlocks":[],"name":"core\/freeform","postId":56025,"blockType":{"name":"core\/freeform","keywords":[],"attributes":{"content":{"type":"string","source":"html"}},"providesContext":[],"usesContext":[],"supports":{"className":false,"customClassName":false,"reusable":false},"styles":[],"apiVersion":2,"title":"Classic","description":"Use the classic WordPress editor.","category":"text","variations":[]},"originalContent":"R\u00e6tt vi\u00f0 R\u00f6gnu S\u00f3lveigu \u00de\u00f3r\u00f0ard\u00f3ttur um sj\u00e1lfsofn\u00e6missj\u00fakd\u00f3minn Alopecia<\/em>\r\n\r\nRagna S\u00f3lveig \u00de\u00f3r\u00f0ard\u00f3ttir er 27 \u00e1ra, fj\u00f6gurra barna m\u00f3\u00f0ir, b\u00fasett \u00ed Reykjav\u00edk. Ragna er f\u00e6dd og uppalin \u00e1 Akranesi og n\u00e6r \u00f6ll hennar fj\u00f6lskylda er enn b\u00fasett \u00fear. Eiginma\u00f0ur R\u00f6gnu er Ingvar \u00de\u00f3r Gylfason listm\u00e1lari. Fyrir \u00e1 Ingvar d\u00f3tturina Unu Bj\u00f6rgu, 16 \u00e1ra, og saman eiga \u00feau Ragna drengina Benedikt \u00de\u00f3r 5 \u00e1ra, Mikael \u00de\u00f3r 3 \u00e1ra og Sebastian \u00de\u00f3r sem f\u00e6ddist \u00ed jan\u00faar \u00e1 \u00feessu \u00e1ri. Ragna er nemi \u00ed f\u00e9lagsr\u00e1\u00f0gj\u00f6f vi\u00f0 H\u00e1sk\u00f3la \u00cdslands en er eins og er \u00ed f\u00e6\u00f0ingarorlofi me\u00f0 Sebastian.\r\n\u00c1ri\u00f0 2019 fer Ragna a\u00f0 taka eftir skallablettum \u00e1 h\u00f6f\u00f0inu. H\u00fan leitar til l\u00e6knis vegna \u00feess sem greinir hana flj\u00f3tlega me\u00f0 sj\u00e1lfsofn\u00e6missj\u00fakd\u00f3minn Alopecia. Ragna segir sj\u00e1lf a\u00f0 h\u00fan s\u00e9 ekki veik \u00fe\u00f3tt h\u00fan s\u00e9 vissulega me\u00f0 sj\u00fakd\u00f3m en h\u00fan vill ekki a\u00f0 sj\u00fakd\u00f3murinn skilgreini sig. Bla\u00f0ama\u00f0ur settist ni\u00f0ur me\u00f0 R\u00f6gnu og f\u00e9kk a\u00f0 heyra hennar s\u00f6gu.\r\n\r\nMissir h\u00e1ri\u00f0 mj\u00f6g flj\u00f3tt<\/strong>\r\n\r\nRagna haf\u00f0i alla t\u00ed\u00f0 veri\u00f0 me\u00f0 \u00feykkt og miki\u00f0 rautt h\u00e1r sem var hennar helsta kennimerki fram \u00e1 fullor\u00f0ins\u00e1r. Snemma \u00e1rs 2019 tekur h\u00fan eftir \u00fev\u00ed a\u00f0 h\u00e1ri\u00f0 er fari\u00f0 a\u00f0 \u00feynnast verulega og blettir farnir a\u00f0 sj\u00e1st \u00e1 h\u00f6f\u00f0inu. \u00c1 \u00feeim t\u00edma voru Ragna og Ingvar tilt\u00f6lulega n\u00fdbyrju\u00f0 a\u00f0 reyna a\u00f0 eignast mi\u00f0judrenginn sinn, Mikael \u00de\u00f3r. \u201e\u00c9g byrja a\u00f0 missa h\u00e1ri\u00f0 eiginlega bara \u00feegar \u00e9g h\u00e6tti \u00e1 getna\u00f0arv\u00f6rninni, svo ver\u00f0 \u00e9g \u00f3l\u00e9tt mj\u00f6g flj\u00f3tlega af Mikael og \u00fe\u00e1 fer eiginlega allt h\u00e1ri\u00f0 af,\u201c segir Ragna, og b\u00e6tir vi\u00f0: \u201e\u00c9g t\u00f3k \u00ed fyrstu eftir \u00feessu \u00feegar \u00e9g var a\u00f0 grei\u00f0a m\u00e9r eftir sturtu og \u00fe\u00e1 kom svo miki\u00f0 h\u00e1r \u00ed h\u00e1rburstann og \u00fea\u00f0 var fari\u00f0 a\u00f0 \u00feynnast og \u00feynnast. \u00c9g byrja\u00f0i \u00fe\u00e1 a\u00f0 f\u00e1 st\u00f3ra skallabletti sem \u00e9g reyndi \u00ed fyrstu a\u00f0 fela en \u00fea\u00f0 gekk mj\u00f6g erfi\u00f0lega \u00fev\u00ed h\u00e1ri\u00f0 var or\u00f0i\u00f0 svo \u00feunnt. \u00c9g hef alltaf veri\u00f0 me\u00f0 mj\u00f6g \u00feykkt og miki\u00f0 rautt h\u00e1r og \u00e9g held a\u00f0 \u00fea\u00f0 hafi veri\u00f0 svona fj\u00f3rir m\u00e1nu\u00f0ir fr\u00e1 \u00fev\u00ed h\u00e1ri\u00f0 f\u00f3r a\u00f0 \u00feynnast \u00fear til \u00fea\u00f0 var bara alveg fari\u00f0.\u201c\r\n\r\n[gallery columns=\"1\" size=\"large\" ids=\"56029\"]\r\n\r\n\u00cd millit\u00ed\u00f0inni leitar Ragna til heimilisl\u00e6knis sem sendir hana \u00e1fram til h\u00fa\u00f0l\u00e6knis og f\u00e6r h\u00fan \u00fe\u00e1 mj\u00f6g flj\u00f3tt \u00feau sv\u00f6r a\u00f0 h\u00fan s\u00e9 me\u00f0 sj\u00e1lfsofn\u00e6missj\u00fakd\u00f3minn Alopecia. \u201e\u00deetta ger\u00f0ist allt mj\u00f6g hratt og \u00e9g var flj\u00f3t a\u00f0 f\u00e1 greiningu. \u00c9g gat samt ekki fari\u00f0 \u00ed neinar ranns\u00f3knir e\u00f0a neitt af \u00fev\u00ed \u00e9g var \u00f3l\u00e9tt og \u00fea\u00f0 skekkir allar bl\u00f3\u00f0prufur \u00feegar reynt er a\u00f0 sko\u00f0a horm\u00f3nagildi og skjaldkirtil og fleira, \u00feannig a\u00f0 \u00fea\u00f0 var ekki h\u00e6gt a\u00f0 gera \u00fea\u00f0, en \u00e9g f\u00e6 greininguna mj\u00f6g flj\u00f3tt engu a\u00f0 s\u00ed\u00f0ur.\u201c\r\n\r\nRagna hefur lesi\u00f0 s\u00e9r miki\u00f0 til um sj\u00fakd\u00f3minn og fylgist me\u00f0 n\u00fdjum ranns\u00f3knum sem ger\u00f0ar eru \u00e1 honum en m\u00f6rgu var\u00f0andi sj\u00fakd\u00f3minn er enn \u00f3svara\u00f0. \u201e\u00dea\u00f0 er tala\u00f0 um a\u00f0 stress og horm\u00f3na\u00f3jafnv\u00e6gi t.d. \u00ed barneignum geti triggera\u00f0 sj\u00fakd\u00f3minn og komi\u00f0 honum af sta\u00f0. \u00deetta eru svona a\u00f0al\u00fe\u00e6ttirnir sem \u00e9g er b\u00fain a\u00f0 sj\u00e1 \u00ed ranns\u00f3knum; stress og \u00e1lag sem hafa \u00e1hrif \u00e1 \u00e1kve\u00f0in horm\u00f3n,\u201c segir Ragna.\r\n\r\nAndlegur slagur vi\u00f0 Alopecia<\/strong>\r\n\r\nAlopecia hefur engin \u00e1hrif \u00e1 daglegt l\u00edf R\u00f6gnu, h\u00fan er l\u00edkamlega fr\u00edsk og segir a\u00f0 h\u00fan finni helst fyrir \u00fev\u00ed a\u00f0 sj\u00fakd\u00f3murinn geti lagst \u00feungt \u00e1 andlegu hli\u00f0ina. \u201eM\u00e9r lei\u00f0 au\u00f0vita\u00f0 ekkert s\u00e9rstaklega vel \u00feegar \u00feetta byrja\u00f0i allt a\u00f0 gerast en m\u00e9r fannst \u00fea\u00f0 hj\u00e1lpa a\u00f0 \u00e9g var \u00f3l\u00e9tt. \u00c9g vissi a\u00f0 \u00e9g var \u00f3l\u00e9tt me\u00f0 str\u00e1k og \u00e9g gat svol\u00edti\u00f0 einbl\u00ednt \u00e1 \u00fea\u00f0,\u201c segir Ragna, en var h\u00fan ekkert hr\u00e6dd? \u201eJ\u00fa, \u00e9g var hr\u00e6dd af \u00fev\u00ed \u00e9g vissi ekki hva\u00f0 var a\u00f0 gerast og vissi ekki hvort \u00fea\u00f0 v\u00e6ri alvarlegt. \u00dea\u00f0 hr\u00e6ddi mig l\u00edka oft \u00e1 t\u00edmabili a\u00f0 \u00fea\u00f0 k\u00e6mi eitthva\u00f0 fyrir drenginn minn af \u00fev\u00ed m\u00e9r fannst l\u00edkaminn minn vera a\u00f0 breg\u00f0ast m\u00e9r og \u00fe\u00e1 var \u00e9g hr\u00e6dd um a\u00f0 l\u00edkaminn v\u00e6ri a\u00f0 breg\u00f0ast honum l\u00edka og \u00fea\u00f0 myndi hafa \u00e1hrif \u00e1 hann \u00ed m\u00f3\u00f0urkvi\u00f0i. Svo f\u00e9kk \u00e9g flj\u00f3tlega a\u00f0 vita a\u00f0 \u00fea\u00f0 var ekki raunin og sj\u00fakd\u00f3murinn haf\u00f0i engin l\u00edkamleg \u00e1hrif \u00e1 me\u00f0g\u00f6nguna.\u201c \u00de\u00e1 segir Ragna a\u00f0 \u00fea\u00f0 hafi vissulega veri\u00f0 l\u00e9ttir a\u00f0 f\u00e1 greininguna \u00e1 sj\u00fakd\u00f3mnum \u00fe\u00f3tt \u00fea\u00f0 hafi veri\u00f0 \u00e1fall. \u201e\u00c9g fann strax fyrir l\u00e9tti \u00feegar \u00e9g vissi a\u00f0 \u00feetta v\u00e6ru ekki st\u00f3rkostleg veikindi sem myndu hamla m\u00e9r l\u00edkamlega, \u00e9g \u00feurfti ekki a\u00f0 fara \u00ed eitthva\u00f0 pr\u00f3gram upp \u00e1 sp\u00edtala e\u00f0a \u00ed lyfjagj\u00f6f e\u00f0a neitt svolei\u00f0is og \u00fea\u00f0 var mikill l\u00e9ttir,\u201c segir Ragna en b\u00e6tir \u00fe\u00f3 vi\u00f0 a\u00f0 \u00fea\u00f0 hafi veri\u00f0 erfitt a\u00f0 s\u00e6tta sig vi\u00f0 a\u00f0 \u00feetta v\u00e6ri raunin. \u201e\u00dea\u00f0 \u00fe\u00fd\u00f0ir samt ekki a\u00f0 dvelja vi\u00f0 \u00fea\u00f0 lengi og \u00e9g var flj\u00f3t a\u00f0 \u00e1tta mig \u00e1 \u00fev\u00ed.\u201c\r\n\r\n[gallery columns=\"1\" size=\"medium\" ids=\"56031\"]\r\n\r\nSj\u00fakd\u00f3murinn er \u00f3\u00fatreiknanlegur<\/strong>\r\n\r\nAlopecia er \u00fer\u00edskiptur sj\u00fakd\u00f3mur og talar Ragna um fyrsta, anna\u00f0 og \u00feri\u00f0ja stig. S\u00e9rtu me\u00f0 \u00feri\u00f0ja stigs Alopecia eru n\u00e6r \u00f6ll l\u00edkamsh\u00e1r farin af og g\u00e6ti s\u00e1 h\u00e1rmissir veri\u00f0 varanlegur. Ragna segir ranns\u00f3knir \u00e1 sj\u00fakd\u00f3mnum s\u00fdna mismunandi ni\u00f0urst\u00f6\u00f0ur og sj\u00fakd\u00f3murinn s\u00e9 \u00fev\u00ed nokku\u00f0 \u00f3\u00fatreiknanlegur. \u201e\u00c9g hef b\u00e6\u00f0i lesi\u00f0 a\u00f0 h\u00e1rsekkirnir s\u00e9u \u00ed dvala og a\u00f0 \u00fea\u00f0 vanti \u00fe\u00e1 eitthva\u00f0 \u00ed l\u00edkamann til a\u00f0 vekja \u00fe\u00e1 til l\u00edfsins. En svo er l\u00edka tala\u00f0 um a\u00f0 \u00f3n\u00e6miskerfi\u00f0 r\u00e1\u00f0ist \u00e1 h\u00e1rsekkina, kerfi\u00f0 s\u00e9 \u00e1 yfirdrifi og haldi a\u00f0 h\u00e1rsekkirnir s\u00e9u v\u00edrus. \u00c9g var\u00f0 til d\u00e6mis fyrst alveg sk\u00f6ll\u00f3tt og \u00fea\u00f0 var bara enginn h\u00e1rv\u00f6xtur. Samkv\u00e6mt \u00fev\u00ed sem \u00e9g hef lesi\u00f0 m\u00e9r til um \u00e1tti a\u00f0 vera n\u00e6r \u00f3m\u00f6gulegt a\u00f0 h\u00e1ri\u00f0 myndi byrja a\u00f0 vaxa aftur, eftir algj\u00f6ran h\u00e1rmissi, en \u00fea\u00f0 eru d\u00e6mi um a\u00f0 \u00fea\u00f0 hafi gerst og \u00fea\u00f0 ger\u00f0ist hj\u00e1 m\u00e9r,\u201c segir Ragna. H\u00fan missti sj\u00e1lf allt h\u00e1ri\u00f0 \u00feegar h\u00fan var \u00f3l\u00e9tt af mi\u00f0judrengnum s\u00ednum, Mikael. \u00de\u00e1 var h\u00fan ekki me\u00f0 nein h\u00e1r nema augnh\u00e1r og segir h\u00fan a\u00f0 augnh\u00e1rin komi og fari \u00f6\u00f0ru hvoru. \u00deegar Ragna var svo \u00f3l\u00e9tt af Sebastian, yngsta str\u00e1knum s\u00ednum, f\u00f3r h\u00fan a\u00f0 taka eftir auknum h\u00e1rvexti og n\u00fana \u00feegar Sebastian er \u00e1tta m\u00e1na\u00f0a gamall er Ragna me\u00f0 t\u00f6luver\u00f0an h\u00e1rv\u00f6xt \u00e1 h\u00f6f\u00f0inu. Ef h\u00fan \u00e6tti sj\u00e1lf a\u00f0 giska \u00fe\u00e1 myndi h\u00fan halda a\u00f0 n\u00fana v\u00e6ru um 50-60% af h\u00e1rinu a\u00f0 koma til baka. En af \u00fev\u00ed a\u00f0 sj\u00fakd\u00f3murinn er svo \u00f3\u00fatreiknanlegur g\u00e6ti h\u00e1ri\u00f0 allt eins byrja\u00f0 a\u00f0 fara af aftur flj\u00f3tlega.\r\n\r\nBjarts\u00fdn vegna n\u00fds l\u00edft\u00e6knilyfs<\/strong>\r\n\r\nEn er eitthva\u00f0 h\u00e6gt a\u00f0 gera til \u00feess a\u00f0 hafa \u00e1hrif \u00e1 \u00feennan sj\u00fakd\u00f3m? \u201eSko, \u00e9g er ekki a\u00f0 taka nein lyf vi\u00f0 sj\u00fakd\u00f3mnum. En \u00e9g vonast til \u00feess a\u00f0 f\u00e1 a\u00f0 pr\u00f3fa lyf n\u00fana \u00ed haust sem \u00e9g veit a\u00f0 hefur haft j\u00e1kv\u00e6\u00f0 \u00e1hrif \u00e1 a\u00f0ra sem eru me\u00f0 \u00feennan sj\u00fakd\u00f3m. \u00deetta er sem sagt \u00e1kve\u00f0i\u00f0 l\u00edft\u00e6knilyf sem er a\u00f0 koma \u00e1 marka\u00f0, a\u00f0 \u00fev\u00ed er \u00e9g best veit, \u00e1 n\u00e6sta \u00e1ri og \u00fea\u00f0 er lyf sem \u00e1 a\u00f0 marka\u00f0ssetja s\u00e9rstaklega fyrir Alopecia sj\u00faklinga. M\u00e9r finnst \u00fea\u00f0 mj\u00f6g j\u00e1kv\u00e6tt \u00fev\u00ed sj\u00fakd\u00f3murinn er mj\u00f6g v\u00ed\u00f0t\u00e6kur og \u00e9g veit til \u00feess a\u00f0 einhverjir taka inn gigtarlyf sem hj\u00e1lpa \u00feeim a\u00f0 halda h\u00e1rlosinu \u00ed skefjum, \u00feannig a\u00f0 \u00fea\u00f0 er mj\u00f6g misjafnt hva\u00f0 virkar fyrir hvern og einn. \u00c9g er allavega mj\u00f6g spennt a\u00f0 f\u00e1 m\u00f6gulega a\u00f0 pr\u00f3fa \u00feetta l\u00edft\u00e6knilyf n\u00fana \u00ed haust,\u201c segir Ragna. H\u00fan hefur \u00fe\u00f3 sj\u00e1lf fundi\u00f0 \u00e1kve\u00f0inn me\u00f0alveg hj\u00e1 s\u00e9r hva\u00f0 var\u00f0ar matar\u00e6\u00f0i, hreyfingu og andlega l\u00ed\u00f0an og finnur a\u00f0 allt \u00feetta getur haft \u00e1hrif \u00e1 sj\u00fakd\u00f3minn. H\u00fan finnur til a\u00f0 mynda mikinn mun \u00e1 \u00fev\u00ed hvernig henni l\u00ed\u00f0ur og s\u00e9r breytingar \u00e1 h\u00e1rvextinum, bara me\u00f0 \u00fev\u00ed a\u00f0 hugsa vel um sig, hreyfa sig og bor\u00f0a \u00fea\u00f0 sem er r\u00e9tt fyrir hana.\r\n\r\n[gallery columns=\"1\" size=\"large\" ids=\"56027\"]\r\n\r\nTilfinninga\u00ferungin stund a\u00f0 raka h\u00e1ri\u00f0 af<\/strong>\r\n\r\n\u00deegar h\u00e1ri\u00f0 var or\u00f0i\u00f0 \u00feunnt og Ragna h\u00e6tt a\u00f0 geta fali\u00f0 skallablettina \u00e1kva\u00f0 h\u00fan a\u00f0 raka af s\u00e9r h\u00e1ri\u00f0. \u00deetta var \u00ed ma\u00ed 2019. \u201e\u00c9g var b\u00fain a\u00f0 hugsa \u00feetta \u00ed sm\u00e1 stund. Svo spyr ma\u00f0urinn minn mig hvort m\u00e9r muni ekki bara l\u00ed\u00f0a betur me\u00f0 a\u00f0 raka h\u00e1ri\u00f0 af \u00ed sta\u00f0 \u00feess a\u00f0 reyna a\u00f0 fela h\u00e1rlosi\u00f0. Vi\u00f0 \u00e1kve\u00f0um \u00fe\u00e1 a\u00f0 gera \u00fea\u00f0 saman og \u00fea\u00f0 var frekar tilfinninga\u00ferungin stund a\u00f0 taka \u00fea\u00f0 litla h\u00e1r sem eftir var,\u201c segir Ragna en h\u00fan og Ingvar \u00e1kv\u00e1\u00f0u eina kv\u00f6ldstundina a\u00f0 sno\u00f0a sig saman og sno\u00f0a um lei\u00f0 Benedikt son \u00feeirra sem \u00fe\u00e1 var eins og h\u00e1lfs \u00e1rs. \u201eM\u00e9r finnst \u00fea\u00f0 l\u00edka segja \u00f3tr\u00falega margt af \u00fev\u00ed a\u00f0 karlmenn eru l\u00edka me\u00f0 Alopecia en \u00fe\u00fa sp\u00e1ir aldrei \u00ed \u00fev\u00ed a\u00f0 \u00fea\u00f0 s\u00e9 eitthva\u00f0 a\u00f0 ef \u00fe\u00fa s\u00e9r\u00f0 sk\u00f6ll\u00f3ttan mann. Sk\u00f6ll\u00f3tt kona er miklu meira tab\u00fa. \u00deannig \u00fea\u00f0 var mj\u00f6g \u00e1hugavert \u00feegar vi\u00f0 r\u00f6ku\u00f0um \u00f6ll af okkur h\u00e1ri\u00f0; \u00e9g, ma\u00f0urinn minn og elsti str\u00e1kurinn okkar. \u00deeir voru aldrei spur\u00f0ir. \u00dea\u00f0 er n\u00e1tt\u00farulega bara e\u00f0lilegt a\u00f0 vera kr\u00fanuraka\u00f0ur e\u00f0a sno\u00f0a\u00f0ur karlma\u00f0ur en um lei\u00f0 og kona er b\u00fain a\u00f0 skafa af s\u00e9r h\u00e1ri\u00f0 \u00fe\u00e1 er \u00fea\u00f0 rosalega merkilegt, segir Ragna.\u201c\r\n\r\nIngvar, eiginma\u00f0ur R\u00f6gnu, hefur fr\u00e1 \u00feessari kv\u00f6ldstund veri\u00f0 sno\u00f0klipptur. \u201eHann er b\u00fainn a\u00f0 vera me\u00f0 m\u00e9r \u00ed \u00feessu n\u00fana \u00ed \u00ferj\u00fa \u00e1r og \u00fea\u00f0 er bara mj\u00f6g skemmtilegt. Oft sno\u00f0um vi\u00f0 okkur saman \u00e1 kv\u00f6ldin. Ingvar er l\u00edka svo upptekinn a\u00f0 hann hefur engan t\u00edma til a\u00f0 vera a\u00f0 hugsa um h\u00e1r,\u201c segir Ragna og glottir. H\u00fan b\u00e6tir svo brosandi vi\u00f0 \u201esvo eru paramyndirnar l\u00edka alltaf s\u00e6tari \u00feegar vi\u00f0 erum me\u00f0 eins klippingu.\u201c\r\n\r\n[gallery columns=\"1\" size=\"medium\" ids=\"56036\"]\r\n\r\n\u00c1kva\u00f0 strax a\u00f0 fara sk\u00f6ll\u00f3tt \u00fat \u00ed l\u00edfi\u00f0<\/strong>\r\n\r\n\u201e\u00c9g \u00e1kva\u00f0 strax a\u00f0 daginn eftir myndi \u00e9g bara fara \u00fat \u00ed l\u00edfi\u00f0 sk\u00f6ll\u00f3tt. \u00c9g \u00e6tla\u00f0i ekkert a\u00f0 reyna a\u00f0 fela \u00fea\u00f0 neitt. \u00c9g \u00e6tla\u00f0i bara a\u00f0 vera sk\u00f6ll\u00f3tt og m\u00e6tti meira a\u00f0 segja beint \u00ed vinnuna daginn eftir. \u00de\u00e1 var \u00e9g a\u00f0 vinna \u00e1 mj\u00f6g skemmtilegum vinnusta\u00f0 me\u00f0 unglingum me\u00f0 s\u00e9r\u00fearfir, \u00feannig a\u00f0 \u00fe\u00fa getur r\u00e9tt \u00edmynda\u00f0 \u00fe\u00e9r hvernig var a\u00f0 m\u00e6ta bara \u00feanga\u00f0 einn daginn sk\u00f6ll\u00f3tt,\u201c segir Ragna hl\u00e6jandi og \u00fdjar a\u00f0 \u00fev\u00ed a\u00f0 h\u00fan hafi \u00fear fengi\u00f0 alls konar athugasemdir. H\u00fan \u00edtrekar svo a\u00f0 \u00fea\u00f0 hafi hj\u00e1lpa\u00f0 henni miki\u00f0 a\u00f0 fara strax \u00fat fyrsta daginn og sj\u00e1 a\u00f0 \u00feetta v\u00e6ri n\u00fa hennar n\u00fdja l\u00edf.\r\n\r\n\u00deennan fyrsta dag f\u00e9kk h\u00fan miki\u00f0 af augngotum og spurningum og f\u00f3lk var\u00f0 hissa a\u00f0 sj\u00e1 hana allt \u00ed einu me\u00f0 ekkert h\u00e1r. H\u00fan setti svo eiginlega strax inn n\u00fdja fors\u00ed\u00f0umynd af s\u00e9r sk\u00f6ll\u00f3ttri \u00e1 samf\u00e9lagsmi\u00f0la sem leiddi til mikils umtals og segir h\u00fan a\u00f0 f\u00f3lk hafi veri\u00f0 forviti\u00f0. \u201e\u00c9g f\u00e9kk miki\u00f0 af spurningum um hvort \u00e9g v\u00e6ri veik og \u00e9g skil alveg a\u00f0 \u00fea\u00f0 s\u00e9 \u00fea\u00f0 fyrsta sem f\u00f3lki dettur \u00ed hug af \u00fev\u00ed a\u00f0 f\u00f3lk veit l\u00edti\u00f0 sem ekkert um \u00feennan sj\u00fakd\u00f3m en \u00fea\u00f0 er alveg h\u00e6gt a\u00f0 vera sk\u00f6ll\u00f3ttur \u00e1n \u00feess a\u00f0 vera \u00ed lyfjame\u00f0fer\u00f0. En j\u00e1 \u00e9g f\u00e9kk miki\u00f0 af spurningum bara sj\u00e1lf \u00ed gegnum samf\u00e9lagsmi\u00f0la og \u00e9g held a\u00f0 f\u00f3lki finnist bara au\u00f0velt a\u00f0 spyrja a\u00f0ra svona \u00ed gegnum s\u00edmann. Svo var f\u00f3lki\u00f0 mitt l\u00edka oft spurt hva\u00f0 v\u00e6ri a\u00f0 hrj\u00e1 mig.\u201c - Og hvernig fannst \u00fe\u00e9r \u00feetta umtal? \u201e\u00deetta var alveg \u00f3\u00fe\u00e6gilegt en \u00e9g var og er samt svo tilb\u00fain a\u00f0 \u00fatsk\u00fdra \u00feetta. \u00c9g vil frekar a\u00f0 f\u00f3lk spyrji mig \u00fat \u00ed \u00feetta en a\u00f0 \u00fea\u00f0 tali \u00e1 bakvi\u00f0 mig eins og \u00fea\u00f0 s\u00e9 eitthva\u00f0 a\u00f0. M\u00e9r fannst eiginlega erfi\u00f0ara \u00feegar f\u00f3lk \u00e1\u00e6tla\u00f0i a\u00f0 \u00fea\u00f0 v\u00e6ri eitthva\u00f0 meira a\u00f0 hj\u00e1 m\u00e9r og spur\u00f0i mig ekki beint, heldur einhvern annan.\r\n\r\nVir\u00f0ingarvert \u00feegar f\u00f3lk notar h\u00e1rkollur<\/strong>\r\n\r\nRagna hefur pr\u00f3fa\u00f0 h\u00e1rkollur en \u00fea\u00f0 er ekki fyrir hana, henni finnst \u00fe\u00e6r \u00f3\u00fe\u00e6gilegar og er mun me\u00f0vita\u00f0ri um sig \u00fe\u00e1 en annars. \u201eF\u00f3lk veit a\u00f0 \u00e9g er ekki me\u00f0 h\u00e1r en samt var \u00e9g a\u00f0 setja upp h\u00e1r og m\u00e9r lei\u00f0 ekki betur \u00feannig. M\u00e9r fannst \u00e9g bara n\u00e1tt\u00farulegri og l\u00edta betur \u00fat sk\u00f6ll\u00f3tt. \u00deannig \u00fea\u00f0 var bara ekki minn tebolli. En \u00fea\u00f0 eru mj\u00f6g margir sem nota h\u00e1rkollur og m\u00e9r finnst \u00fea\u00f0 bara vir\u00f0ingarvert af \u00fev\u00ed a\u00f0 \u00e9g get \u00fea\u00f0 ekki, m\u00e9r finnst \u00fea\u00f0 svo \u00f3\u00fe\u00e6gilegt. \u00c9g nota alveg sl\u00e6\u00f0ur og h\u00fafur en oft er \u00e9g l\u00edka bara \u00e1 skallanum,\u201c segir Ragna.\r\n\r\n[gallery columns=\"1\" size=\"large\" ids=\"56028\"]\r\n\r\nSk\u00f6ll\u00f3tta stj\u00fapan<\/strong>\r\n\r\nUna Bj\u00f6rg stj\u00fapd\u00f3ttir R\u00f6gnu var 13 \u00e1ra \u00feegar Ragna greinist me\u00f0 Alopecia og rakar af s\u00e9r \u00fea\u00f0 litla h\u00e1r sem eftir var. H\u00fan segir \u00fea\u00f0 hafa veri\u00f0 \u00e1hugavert a\u00f0 fylgjast me\u00f0 vi\u00f0br\u00f6g\u00f0um Unu og jafnaldra hennar vi\u00f0 \u00feessari breytingu. \u201e\u00c9g er svo fegin a\u00f0 \u00feessi n\u00fdja kynsl\u00f3\u00f0 er svo \u00f3tr\u00falega m\u00f3tt\u00e6kileg fyrir breytingum og a\u00f0 vera bara alls konar. Una h\u00e9lt n\u00e1tt\u00farulega fyrst a\u00f0 \u00e9g v\u00e6ri veik og \u00fea\u00f0 var kannski d\u00e1l\u00edti\u00f0 erfitt a\u00f0 \u00fatsk\u00fdra fyrir henni a\u00f0 \u00feetta v\u00e6ri ekkert alvarlegt. En h\u00fan vandist \u00feessu strax og allar vinkonur hennar l\u00edka og \u00feetta hefur ekki veri\u00f0 neitt m\u00e1l. \u00c9g var\u00f0 \u00ed rauninni bara strax sk\u00f6ll\u00f3tta stj\u00fapan og ekkert meira um \u00fea\u00f0 a\u00f0 segja.\u201c\r\n\r\nL\u00edka kostur a\u00f0 vera ekki me\u00f0 h\u00e1r<\/strong>\r\n\r\nRagna er fyrir l\u00f6ngu b\u00fain a\u00f0 s\u00e6tta sig vi\u00f0 h\u00e1rmissinn. \u201e\u00c9g held a\u00f0 \u00e9g s\u00e9 \u00ed raun bara meira \u00feakkl\u00e1t fyrir \u00feetta ferli allt saman heldur en eitthva\u00f0 anna\u00f0. Af \u00fev\u00ed \u00fe\u00fa l\u00e6rir svo miki\u00f0 \u00e1 styrkleika \u00fe\u00edna \u00feegar \u00fe\u00fa lendir \u00ed einhverju sem \u00fe\u00fa r\u00e6\u00f0ur ekki vi\u00f0. \u00de\u00e1 s\u00e9r\u00f0u hva\u00f0 \u00fe\u00fa ert sterk e\u00f0a sterkur. \u00deegar \u00e9g f\u00f3r a\u00f0 hugsa \u00feetta \u00feannig, \u00fe\u00e1 var \u00e9g bara frekar s\u00e1tt,\u201c segir Ragna. Svo er \u00fea\u00f0 l\u00edka kostur a\u00f0 \u00feurfa aldrei a\u00f0 hugsa um h\u00e1ri\u00f0 \u00e1 s\u00e9r, \u00fea\u00f0 sparar b\u00e6\u00f0i peninga og t\u00edma. \u201eJ\u00e1 m\u00e9r finnst \u00fea\u00f0 mj\u00f6g \u00fe\u00e6gilegt a\u00f0 \u00feurfa ekki a\u00f0 vesenast me\u00f0 h\u00e1ri\u00f0 \u00e1 m\u00e9r, s\u00e9rstaklega \u00feegar \u00e9g \u00e1 svona m\u00f6rg b\u00f6rn. \u00c9g fer til d\u00e6mis ekki \u00ed klippingu \u00feannig a\u00f0 au\u00f0vita\u00f0 fer \u00e9g \u00ed neglur og nudd og get leyft m\u00e9r \u00fea\u00f0 \u00feannig \u00fea\u00f0 er alveg kostur,\u201c segir Ragna og b\u00e6tir vi\u00f0. \u201eEins og \u00e9g segi var \u00e9g mj\u00f6g flj\u00f3t a\u00f0 venjast \u00fev\u00ed a\u00f0 vera sk\u00f6ll\u00f3tt og \u00e9g er l\u00edka stolt af \u00fev\u00ed a\u00f0 hafa vanist \u00feessu svona flj\u00f3tt. Svo hef \u00e9g veri\u00f0 a\u00f0 \u00fatsk\u00fdra \u00feennan blessa\u00f0a sj\u00fakd\u00f3m fyrir m\u00f6rgum \u00fev\u00ed \u00feetta er sj\u00fakd\u00f3mur sem f\u00e1ir vita af en er \u00fe\u00f3 nokku\u00f0 algengur,\u201c segir Ragna en samkv\u00e6mt uppl\u00fdsingum fr\u00e1 Al\u00fej\u00f3\u00f0a Alopecia samt\u00f6kunum (NAAF) eru um 2% jar\u00f0arb\u00faa sem f\u00e1 einkenni \u00feessa sj\u00fakd\u00f3ms einhvern t\u00edmann \u00e1 l\u00edfslei\u00f0inni. Ragna segist l\u00edka vera \u00e1n\u00e6g\u00f0 me\u00f0 vitundarvakninguna sem hefur aukist s\u00ed\u00f0ustu \u00e1r \u00fati \u00ed heimi og l\u00edka h\u00e9r \u00e1 \u00cdslandi, s\u00e9rstaklega eftir mikla fj\u00f6lmi\u00f0laumfj\u00f6llun um Alopecia \u00ed fyrrasumar.\r\n\r\n\u201e\u00dea\u00f0 er fullt af konum me\u00f0 \u00feetta, fullt\u201c<\/strong>\r\n\r\nSumari\u00f0 2021 f\u00f3r bla\u00f0ama\u00f0ur Mannl\u00edfs \u00e1 st\u00fafana og leita\u00f0i uppi konur sem eru me\u00f0 Alopecia. Bla\u00f0ama\u00f0urinn t\u00f3k vi\u00f0t\u00f6l vi\u00f0 konurnar og skrifa\u00f0i miki\u00f0 um sj\u00fakd\u00f3minn \u00fea\u00f0 sumar. \u00cd september var svo vitundarvakningarm\u00e1nu\u00f0ur Alopecia og \u00fe\u00e1 hittust allar konurnar sem h\u00f6f\u00f0u veri\u00f0 \u00ed umfj\u00f6llun Mannl\u00edfs um sumari\u00f0 og skrifu\u00f0 var s\u00e9r grein um \u00feann hitting. \u201e\u00dea\u00f0 var ekkert b\u00fai\u00f0 a\u00f0 tala um Alopecia \u00ed fleiri \u00e1r og f\u00e1ir vissu af sj\u00fakd\u00f3mnum og \u00e9g finn n\u00fana s\u00e9rstaklega eftir alla umfj\u00f6llunina s\u00ed\u00f0asta sumar a\u00f0 f\u00f3lk er me\u00f0vita\u00f0ra um a\u00f0 \u00fe\u00f3tt \u00e9g s\u00e9 sk\u00f6ll\u00f3tt s\u00e9 ekki endilega neitt alvarlegt a\u00f0, heldur s\u00e9 \u00feetta sj\u00e1lfsofn\u00e6mi. Og \u00fea\u00f0 er fullt af konum me\u00f0 \u00feetta, fullt,\u201c segir Ragna.\r\n\r\nBaldvin<\/strong>\r\n\r\n\u00c1 Facebook er stu\u00f0ningsh\u00f3pur fyrir f\u00f3lk me\u00f0 Alopecia. H\u00f3purinn heitir Baldvin, sem er \u00e1kve\u00f0i\u00f0 or\u00f0agr\u00edn \u00fev\u00ed enska or\u00f0i\u00f0 bald \u00fe\u00fd\u00f0ir sk\u00f6ll\u00f3ttur og g\u00e6ti \u00fe\u00fd\u00f0ing \u00e1 nafninu \u00fe\u00e1 veri\u00f0 \u201ask\u00f6ll\u00f3ttir vinir\u2018. H\u00f3purinn hefur veri\u00f0 a\u00f0 vakna til l\u00edfsins og segist Ragna vera b\u00fain a\u00f0 kynnast nokkrum konum \u00ed gegnum h\u00f3pinn en l\u00edka \u00e1 \u00f6\u00f0rum vettvangi. A\u00f0spur\u00f0 segist h\u00fan finna fyrir stu\u00f0ning a\u00f0 vita af \u00f6\u00f0rum sem eru a\u00f0 takast \u00e1 vi\u00f0 sama verkefni og h\u00fan. \u201eMa\u00f0ur finnur a\u00f0 ma\u00f0ur er ekki Palli einn \u00ed heiminum \u00fe\u00f3tt \u00fea\u00f0 s\u00e9 kannski enginn \u00ed manns innsta hring me\u00f0 sama sj\u00fakd\u00f3m. \u00deegar \u00e9g f\u00f3r inn \u00ed Facebookh\u00f3pinn s\u00e1 \u00e9g hva\u00f0 Alopecia er miklu algengari en f\u00f3lk \u00e1ttar sig \u00e1 og \u00e9g \u00e1tta\u00f0i mig \u00e1 sj\u00e1lf.\r\n\r\n[gallery columns=\"2\" size=\"medium\" ids=\"56034,56033\"]\r\n\r\nTekur miki\u00f0 \u00e1 s\u00e1lina a\u00f0 fela hvernig ma\u00f0ur er<\/strong>\r\n\r\nStuttu eftir a\u00f0 Ragna rakar af s\u00e9r h\u00e1ri\u00f0 \u00e1kve\u00f0ur Ingvar eiginma\u00f0ur hennar a\u00f0 m\u00e1la mynd af henni sk\u00f6ll\u00f3ttri. Ingvar er \u00feekktur listm\u00e1lari og \u00feegar hann setti inn mynd af m\u00e1lverkinu \u00e1 samf\u00e9lagsmi\u00f0lana s\u00edna hr\u00fagu\u00f0ust inn skilabo\u00f0 \u00fear fr\u00e1 konum me\u00f0 Alopecia. \u201eMargar \u00feeirra voru bara a\u00f0 segja vi\u00f0 hann hva\u00f0 \u00feetta v\u00e6ri falleg mynd og a\u00f0 \u00fe\u00e6r vildu a\u00f0 \u00fe\u00e6r hef\u00f0u kjark \u00ed a\u00f0 vera sk\u00f6ll\u00f3ttar \u00fati me\u00f0al f\u00f3lks. \u00deetta var bara fullt af konum sem gengu me\u00f0 sl\u00e6\u00f0ur e\u00f0a h\u00e1rkollur og vi\u00f0 vorum b\u00e6\u00f0i mj\u00f6g hissa a\u00f0 sj\u00e1 hva\u00f0 \u00fea\u00f0 voru virkilega margar konur sem voru alveg h\u00e1rlausar. Og l\u00edka konur sem voru me\u00f0 bletti h\u00e9r og \u00fear, ekki endilega b\u00fanar a\u00f0 missa allt h\u00e1ri\u00f0, og \u00ed fleiri \u00e1r b\u00fanar a\u00f0 reyna a\u00f0 fela skallablettina. \u00dea\u00f0 tekur l\u00edka miki\u00f0 \u00e1 s\u00e1lina; a\u00f0 vera alltaf a\u00f0 fela hvernig ma\u00f0ur er. \u00dea\u00f0 er d\u00e1l\u00edti\u00f0 hart. S\u00e9rstaklega \u00ed lengri t\u00edma,\u201c segir Ragna og m\u00e1li\u00f0 er henni auglj\u00f3slega hugleiki\u00f0.\r\n\r\n\u201e\u00c9g er a\u00f0 tala vi\u00f0 \u00feig, er \u00fea\u00f0 ekki\u201c<\/strong>\r\n\r\nHva\u00f0 \u00e6tlar Ragna a\u00f0 gera \u00ed tilefni septemberm\u00e1na\u00f0ar til a\u00f0 vekja athygli \u00e1 Alopecia? \u201e\u00c9g er a\u00f0 tala vi\u00f0 \u00feig, er \u00fea\u00f0 ekki!\u201c segir Ragna og hl\u00e6r. H\u00fan b\u00e6tir vi\u00f0 a\u00f0 \u00fea\u00f0 s\u00e9 ekki s\u00e9rlega miki\u00f0 \u00ed gangi \u00e1 \u00cdslandi, \u00fea\u00f0 s\u00e9u til a\u00f0 mynda engir skipulag\u00f0ir hittingar e\u00f0a vi\u00f0bur\u00f0ir. Ragna fylgist \u00fe\u00f3 miki\u00f0 me\u00f0 Alopecia samf\u00e9laginu \u00e1 samf\u00e9lagsmi\u00f0lum en \u00fati \u00ed heimi er mj\u00f6g virkt starf. \u00cd Bretlandi er til d\u00e6mis risast\u00f3rt samf\u00e9lag og \u00fear eru skipulag\u00f0ir hittingar. \u201e\u00deau eru me\u00f0 boli og skr\u00fa\u00f0g\u00f6ngur og alls konar og \u00e9g s\u00e9 \u00fea\u00f0 bara allt \u00e1 samf\u00e9lagsmi\u00f0lum. \u00dea\u00f0 er miklu meira um svona starf \u00fati \u00ed heimi heldur en er h\u00e9r en kannski \u00e6tti ma\u00f0ur bara a\u00f0 keyra svona starf \u00ed gang h\u00e9r heima, \u00fea\u00f0 er kannski ekki svo vitlaust,\u201c segir Ragna en h\u00fan er vi\u00f0b\u00fain \u00fev\u00ed a\u00f0 sj\u00e1 og lesa miki\u00f0 af s\u00f6gum f\u00f3lks me\u00f0 Alopecia \u00e1 n\u00e6stu vikum. \u201eF\u00f3lk segir oft s\u00f6gurnar s\u00ednar \u00ed \u00feessum m\u00e1nu\u00f0i og foreldrar barna me\u00f0 Alopecia deila gjarnan s\u00f6gunum \u00feeirra. \u00c9g er a\u00f0 fylgja m\u00f6rgum svona a\u00f0g\u00f6ngum \u00e1 Instagram \u00feannig \u00fea\u00f0 kemur allavega miki\u00f0 inn \u00e1 Instagrammi\u00f0 hj\u00e1 m\u00e9r n\u00fana \u00e1 n\u00e6stunni,\u201c segir Ragna.\r\n\r\n[gallery columns=\"1\" size=\"large\" ids=\"56032\"]\r\n\r\nMikilv\u00e6gt a\u00f0 sj\u00e1 sk\u00f6ll\u00f3ttar fyrirs\u00e6tur<\/strong>\r\n\r\n\u00dea\u00f0 sem Ragna er kannski \u00e1n\u00e6g\u00f0ust me\u00f0 hva\u00f0 var\u00f0ar vitundarvakningu er a\u00f0 n\u00fana eru fyrirt\u00e6ki farin a\u00f0 r\u00e1\u00f0a inn fj\u00f6lbreyttari fyrirs\u00e6tur til a\u00f0 augl\u00fdsa varning. \u00dear nefnir h\u00fan \u00e1kve\u00f0i\u00f0 sundfatafyrirt\u00e6ki \u00ed Bandar\u00edkjunum sem r\u00e9\u00f0i til s\u00edn fyrirs\u00e6tu sem er me\u00f0 Alopecia. \u201eH\u00fan er sem sagt fyrsta sk\u00f6ll\u00f3tta m\u00f3deli\u00f0 sem \u00e9g hef s\u00e9\u00f0 hj\u00e1 sundfatal\u00ednum og h\u00fan er alveg geggju\u00f0, svo \u00f3tr\u00falega flott! Svo versla \u00e9g l\u00edka miki\u00f0 \u00e1 Asos og n\u00fana n\u00fdlega komu inn sk\u00f6ll\u00f3ttar fyrirs\u00e6tur \u00fear. \u00deetta er alveg \u00f3tr\u00falega mikilv\u00e6gt fyrir okkur sem erum me\u00f0 \u00feennan sj\u00fakd\u00f3m \u00fev\u00ed \u00feetta hj\u00e1lpar vitundarvakningunni, bara \u00fea\u00f0 a\u00f0 f\u00f3lk sj\u00e1i meira. M\u00e9r fannst \u00f3tr\u00falega gaman a\u00f0 sj\u00e1 \u00feetta og \u00feetta hj\u00e1lpar m\u00e9r pers\u00f3nulega l\u00edka \u00fev\u00ed eftir a\u00f0 \u00e9g missti h\u00e1ri\u00f0 \u00fe\u00e1 hugsa \u00e9g meira um hvernig \u00e9g l\u00edt \u00fat \u00ed \u00feessu og hinu. \u00deegar \u00fe\u00fa ert me\u00f0 h\u00e1r \u00fe\u00e1 getur \u00fe\u00fa hugsa\u00f0 a\u00f0 \u00fe\u00fa ver\u00f0ir t.d. me\u00f0 krulla\u00f0 h\u00e1r \u00feegar \u00fe\u00fa ert \u00ed \u00feessum kj\u00f3l og getur sett h\u00e1ri\u00f0 upp vi\u00f0 annan kj\u00f3l. En \u00feegar \u00fe\u00fa ert sk\u00f6ll\u00f3tt \u00fe\u00e1 gerir \u00fe\u00fa engar krullur, \u00fe\u00fa bara m\u00e1lar \u00feig og fer\u00f0 \u00ed kj\u00f3linn,\u201c segir Ragna en h\u00fan haf\u00f0i alltaf mj\u00f6g gaman af \u00fev\u00ed a\u00f0 krulla \u00e1 s\u00e9r h\u00e1ri\u00f0 og dunda s\u00e9r vi\u00f0 a\u00f0 grei\u00f0a \u00fea\u00f0 og gera \u00fea\u00f0 flott. \u201eSvo er \u00e9g n\u00fana b\u00fain a\u00f0 missa h\u00e1ri\u00f0 og \u00e9g er ekki a\u00f0 fara a\u00f0 gera neinar krullur. \u00dea\u00f0 er d\u00e1l\u00edti\u00f0 skr\u00edti\u00f0, en ekkert m\u00e1l engu a\u00f0 s\u00ed\u00f0ur.\u201c Bla\u00f0ama\u00f0ur sk\u00fdtur \u00fe\u00e1 inn \u00ed a\u00f0 h\u00fan hafi \u00ed \u00feokkab\u00f3t eignast \u00ferj\u00e1 str\u00e1ka. \u00dea\u00f0 er stutt \u00ed h\u00famorinn og gle\u00f0ina hj\u00e1 R\u00f6gnu og h\u00fan svarar um h\u00e6l a\u00f0 h\u00fan l\u00e1ti syni s\u00edna safna h\u00e1ri svo h\u00fan geti greitt \u00fea\u00f0 og d\u00falla\u00f0 \u00ed \u00fev\u00ed.\r\n\r\nErfi\u00f0ast a\u00f0 sakna<\/strong>\r\n\r\nRagna ber h\u00f6fu\u00f0i\u00f0 h\u00e1tt og hefur tekist \u00e1 vi\u00f0 \u00feetta verkefni me\u00f0 j\u00e1kv\u00e6\u00f0u hugarfari og h\u00famor \u00fe\u00f3tt sj\u00fakd\u00f3murinn hafi lagst \u00e1 andlegu hli\u00f0 hennar. Eiginma\u00f0ur hennar er hennar sto\u00f0 og stytta og fj\u00f6lskyldul\u00edfi\u00f0 er henni afar k\u00e6rt. H\u00fan er gl\u00f6\u00f0 og \u00feakkl\u00e1t fyrir a\u00f0 sj\u00fakd\u00f3murinn h\u00e1i henni ekki \u00ed daglegu l\u00edfi en h\u00fan syrgir h\u00e1ri\u00f0 sem h\u00fan haf\u00f0i. \u201e\u00dea\u00f0 sem var erfi\u00f0ast \u00ed \u00feessu fyrir mig var kannski ekki \u00e1falli\u00f0 vi\u00f0 a\u00f0 missa h\u00e1ri\u00f0 og a\u00f0 \u00fea\u00f0 v\u00e6ri a\u00f0 gerast heldur var \u00fea\u00f0 kannski frekar s\u00f6knu\u00f0urinn. \u00c9g held a\u00f0 \u00fea\u00f0 s\u00e9 b\u00fai\u00f0 a\u00f0 vera \u00fea\u00f0 erfi\u00f0asta, a\u00f0 sakna. \u00c9g var l\u00edka bara, sorr\u00fd, me\u00f0 fallegasta h\u00e1r \u00ed heimi, \u00fea\u00f0 var svo s\u00edtt og \u00feykkt og gordj\u00f6ss og \u00e9g kann a\u00f0 meta \u00fea\u00f0 svo miki\u00f0 n\u00fana \u00feegar \u00e9g hef \u00fea\u00f0 ekki lengur. Og s\u00f6knu\u00f0urinn er kannski l\u00edka svona mikill \u00fev\u00ed \u00e9g veit a\u00f0 \u00e9g mun l\u00edklega aldrei f\u00e1 h\u00e1ri\u00f0 aftur. \u00de\u00e1 mun \u00e9g aldrei f\u00e1 a\u00f0 gera \u00fea\u00f0 sem m\u00e9r fannst svo skemmtilegt, a\u00f0 hugsa um h\u00e1ri\u00f0, krulla \u00fea\u00f0 og gera \u00fea\u00f0 fallegt,\u201c segir Ragna og er or\u00f0in ansi meyr, h\u00fan hristir \u00fea\u00f0 \u00fe\u00f3 flj\u00f3tt af s\u00e9r og b\u00e6tir vi\u00f0. \u201eEn \u00fea\u00f0 er bara eins og \u00fea\u00f0 er, l\u00edfi\u00f0 kemur til manns og ma\u00f0ur r\u00e6\u00f0ur ekki alltaf yfir \u00f6llu.\u201c\r\n\r\nVill vinna \u00ed velfer\u00f0arkerfinu<\/strong>\r\n\r\nRagna er sem fyrr segir nemi \u00ed f\u00e9lagsr\u00e1\u00f0gj\u00f6f vi\u00f0 H\u00e1sk\u00f3la \u00cdslands. H\u00fan hefur mikinn \u00e1huga \u00e1 velfer\u00f0arkerfi \u00cdslands og s\u00e9rstaklega \u00fev\u00ed sem sn\u00fdr a\u00f0 b\u00f6rnum og s\u00e9r fyrir s\u00e9r a\u00f0 vinna vi\u00f0 eitthva\u00f0 tengt \u00fev\u00ed \u00ed n\u00e1inni framt\u00ed\u00f0. \u201e\u00c9g byrja\u00f0i a\u00f0 l\u00e6ra vi\u00f0skiptafr\u00e6\u00f0i \u00ed h\u00e1sk\u00f3lanum. Ma\u00f0ur vinkonu minnar var hins vegar a\u00f0 vinna hj\u00e1 Barnavernd og m\u00e9r fannst \u00fea\u00f0 svo \u00f3tr\u00falega \u00e1hugavert a\u00f0 \u00e9g var alltaf a\u00f0 spyrja hann \u00fat \u00ed vinnuna. \u00cd samt\u00f6lum m\u00ednum vi\u00f0 hann kvikna\u00f0i bara mikill \u00e1hugi hj\u00e1 m\u00e9r \u00e1 velfer\u00f0arkerfum og \u00fe\u00e1 s\u00e9rstaklega \u00fev\u00ed sem kemur a\u00f0 b\u00f6rnum. Hann benti m\u00e9r \u00e1 f\u00e9lagsr\u00e1\u00f0gjafarn\u00e1mi\u00f0 og \u00feegar \u00e9g las n\u00e1msl\u00fdsinguna \u00e1 \u00fev\u00ed n\u00e1mi \u00fe\u00e1 fannst m\u00e9r h\u00fan svo spennandi og allt \u00ed henni \u00e1tti vel vi\u00f0 mig svo \u00e9g \u00e1kva\u00f0 a\u00f0 skr\u00e1 mig.\u201c F\u00e9lagsr\u00e1\u00f0gj\u00f6f er a\u00f0 s\u00f6gn R\u00f6gnu mj\u00f6g v\u00ed\u00f0t\u00e6k fr\u00e6\u00f0igrein og b\u00ed\u00f0ur upp \u00e1 margt \u00f3l\u00edkan starfsvettvang. \u201e\u00c9g myndi vilja vinna a\u00f0 einhverju sem sn\u00fdr a\u00f0 b\u00f6rnum og \u00feeirra velfer\u00f0 en m\u00e9r finnst l\u00edka \u00e1hugaver\u00f0 til d\u00e6mis samskipti hj\u00f3na og para og \u00e9g held \u00e9g v\u00e6ri l\u00edka til \u00ed a\u00f0 sko\u00f0a \u00fea\u00f0, einhvers konar hj\u00f3nar\u00e1\u00f0gj\u00f6f. \u00deannig \u00fea\u00f0 tvennt kveikti \u00e1huga minn \u00e1 a\u00f0 byrja \u00ed f\u00e9lagsr\u00e1\u00f0gj\u00f6finni,\u201c segir Ragna.\r\n\r\n[gallery columns=\"1\" size=\"large\" ids=\"56030\"]\r\n\r\nHeldur \u00e1fram a\u00f0 lifa \u00ed s\u00e1tt og gle\u00f0i<\/strong>\r\n\r\n\u00cd dag er Ragna \u00ed f\u00e6\u00f0ingarorlofi me\u00f0 Sebastian \u00de\u00f3r. H\u00fan \u00e6tlar a\u00f0 nj\u00f3ta \u00feess a\u00f0 vera me\u00f0 hann heima \u00fat \u00e1ri\u00f0 og heldur svo \u00e1fram me\u00f0 h\u00e1sk\u00f3lan\u00e1mi\u00f0 \u00ed jan\u00faar. \u00deegar Ragna er innt eftir framt\u00ed\u00f0arpl\u00f6num kemur \u00e1 hana sm\u00e1 f\u00e1t en svo svarar h\u00fan. \u201eVi\u00f0 fj\u00f6lskyldan erum \u00e1 n\u00e6stu m\u00e1nu\u00f0um a\u00f0 fara a\u00f0 flytja og koma okkur fyrir \u00ed \u00f6\u00f0ru hverfi. Svo bara \u00e6tla \u00e9g a\u00f0 halda \u00e1fram a\u00f0 lifa \u00ed s\u00e1tt og gle\u00f0i. \u00c9g held a\u00f0 \u00fea\u00f0 s\u00e9 bara \u00fea\u00f0 eina sem ma\u00f0ur getur plana\u00f0. Getur ma\u00f0ur plana\u00f0 eitthva\u00f0 \u00ed \u00feessu l\u00edfi fyrir utan \u00fea\u00f0? J\u00e1 og kannski n\u00e1 markmi\u00f0um s\u00ednum og elta hamingjuna. \u00dea\u00f0 eru m\u00edn pl\u00f6n,\u201c segir Ragna a\u00f0 lokum og l\u00edfsgle\u00f0in leynir s\u00e9r ekki hj\u00e1 \u00feessari kjarnakonu.\r\n\r\n \r\n\r\n \r\n\r\n ","saveContent":"R\u00e6tt vi\u00f0 R\u00f6gnu S\u00f3lveigu \u00de\u00f3r\u00f0ard\u00f3ttur um sj\u00e1lfsofn\u00e6missj\u00fakd\u00f3minn Alopecia<\/em>\r\n\r\nRagna S\u00f3lveig \u00de\u00f3r\u00f0ard\u00f3ttir er 27 \u00e1ra, fj\u00f6gurra barna m\u00f3\u00f0ir, b\u00fasett \u00ed Reykjav\u00edk. Ragna er f\u00e6dd og uppalin \u00e1 Akranesi og n\u00e6r \u00f6ll hennar fj\u00f6lskylda er enn b\u00fasett \u00fear. Eiginma\u00f0ur R\u00f6gnu er Ingvar \u00de\u00f3r Gylfason listm\u00e1lari. Fyrir \u00e1 Ingvar d\u00f3tturina Unu Bj\u00f6rgu, 16 \u00e1ra, og saman eiga \u00feau Ragna drengina Benedikt \u00de\u00f3r 5 \u00e1ra, Mikael \u00de\u00f3r 3 \u00e1ra og Sebastian \u00de\u00f3r sem f\u00e6ddist \u00ed jan\u00faar \u00e1 \u00feessu \u00e1ri. Ragna er nemi \u00ed f\u00e9lagsr\u00e1\u00f0gj\u00f6f vi\u00f0 H\u00e1sk\u00f3la \u00cdslands en er eins og er \u00ed f\u00e6\u00f0ingarorlofi me\u00f0 Sebastian.\r\n\u00c1ri\u00f0 2019 fer Ragna a\u00f0 taka eftir skallablettum \u00e1 h\u00f6f\u00f0inu. H\u00fan leitar til l\u00e6knis vegna \u00feess sem greinir hana flj\u00f3tlega me\u00f0 sj\u00e1lfsofn\u00e6missj\u00fakd\u00f3minn Alopecia. Ragna segir sj\u00e1lf a\u00f0 h\u00fan s\u00e9 ekki veik \u00fe\u00f3tt h\u00fan s\u00e9 vissulega me\u00f0 sj\u00fakd\u00f3m en h\u00fan vill ekki a\u00f0 sj\u00fakd\u00f3murinn skilgreini sig. Bla\u00f0ama\u00f0ur settist ni\u00f0ur me\u00f0 R\u00f6gnu og f\u00e9kk a\u00f0 heyra hennar s\u00f6gu.\r\n\r\nMissir h\u00e1ri\u00f0 mj\u00f6g flj\u00f3tt<\/strong>\r\n\r\nRagna haf\u00f0i alla t\u00ed\u00f0 veri\u00f0 me\u00f0 \u00feykkt og miki\u00f0 rautt h\u00e1r sem var hennar helsta kennimerki fram \u00e1 fullor\u00f0ins\u00e1r. Snemma \u00e1rs 2019 tekur h\u00fan eftir \u00fev\u00ed a\u00f0 h\u00e1ri\u00f0 er fari\u00f0 a\u00f0 \u00feynnast verulega og blettir farnir a\u00f0 sj\u00e1st \u00e1 h\u00f6f\u00f0inu. \u00c1 \u00feeim t\u00edma voru Ragna og Ingvar tilt\u00f6lulega n\u00fdbyrju\u00f0 a\u00f0 reyna a\u00f0 eignast mi\u00f0judrenginn sinn, Mikael \u00de\u00f3r. \u201e\u00c9g byrja a\u00f0 missa h\u00e1ri\u00f0 eiginlega bara \u00feegar \u00e9g h\u00e6tti \u00e1 getna\u00f0arv\u00f6rninni, svo ver\u00f0 \u00e9g \u00f3l\u00e9tt mj\u00f6g flj\u00f3tlega af Mikael og \u00fe\u00e1 fer eiginlega allt h\u00e1ri\u00f0 af,\u201c segir Ragna, og b\u00e6tir vi\u00f0: \u201e\u00c9g t\u00f3k \u00ed fyrstu eftir \u00feessu \u00feegar \u00e9g var a\u00f0 grei\u00f0a m\u00e9r eftir sturtu og \u00fe\u00e1 kom svo miki\u00f0 h\u00e1r \u00ed h\u00e1rburstann og \u00fea\u00f0 var fari\u00f0 a\u00f0 \u00feynnast og \u00feynnast. \u00c9g byrja\u00f0i \u00fe\u00e1 a\u00f0 f\u00e1 st\u00f3ra skallabletti sem \u00e9g reyndi \u00ed fyrstu a\u00f0 fela en \u00fea\u00f0 gekk mj\u00f6g erfi\u00f0lega \u00fev\u00ed h\u00e1ri\u00f0 var or\u00f0i\u00f0 svo \u00feunnt. \u00c9g hef alltaf veri\u00f0 me\u00f0 mj\u00f6g \u00feykkt og miki\u00f0 rautt h\u00e1r og \u00e9g held a\u00f0 \u00fea\u00f0 hafi veri\u00f0 svona fj\u00f3rir m\u00e1nu\u00f0ir fr\u00e1 \u00fev\u00ed h\u00e1ri\u00f0 f\u00f3r a\u00f0 \u00feynnast \u00fear til \u00fea\u00f0 var bara alveg fari\u00f0.\u201c\r\n\r\n[gallery columns=\"1\" size=\"large\" ids=\"56029\"]\r\n\r\n\u00cd millit\u00ed\u00f0inni leitar Ragna til heimilisl\u00e6knis sem sendir hana \u00e1fram til h\u00fa\u00f0l\u00e6knis og f\u00e6r h\u00fan \u00fe\u00e1 mj\u00f6g flj\u00f3tt \u00feau sv\u00f6r a\u00f0 h\u00fan s\u00e9 me\u00f0 sj\u00e1lfsofn\u00e6missj\u00fakd\u00f3minn Alopecia. \u201e\u00deetta ger\u00f0ist allt mj\u00f6g hratt og \u00e9g var flj\u00f3t a\u00f0 f\u00e1 greiningu. \u00c9g gat samt ekki fari\u00f0 \u00ed neinar ranns\u00f3knir e\u00f0a neitt af \u00fev\u00ed \u00e9g var \u00f3l\u00e9tt og \u00fea\u00f0 skekkir allar bl\u00f3\u00f0prufur \u00feegar reynt er a\u00f0 sko\u00f0a horm\u00f3nagildi og skjaldkirtil og fleira, \u00feannig a\u00f0 \u00fea\u00f0 var ekki h\u00e6gt a\u00f0 gera \u00fea\u00f0, en \u00e9g f\u00e6 greininguna mj\u00f6g flj\u00f3tt engu a\u00f0 s\u00ed\u00f0ur.\u201c\r\n\r\nRagna hefur lesi\u00f0 s\u00e9r miki\u00f0 til um sj\u00fakd\u00f3minn og fylgist me\u00f0 n\u00fdjum ranns\u00f3knum sem ger\u00f0ar eru \u00e1 honum en m\u00f6rgu var\u00f0andi sj\u00fakd\u00f3minn er enn \u00f3svara\u00f0. \u201e\u00dea\u00f0 er tala\u00f0 um a\u00f0 stress og horm\u00f3na\u00f3jafnv\u00e6gi t.d. \u00ed barneignum geti triggera\u00f0 sj\u00fakd\u00f3minn og komi\u00f0 honum af sta\u00f0. \u00deetta eru svona a\u00f0al\u00fe\u00e6ttirnir sem \u00e9g er b\u00fain a\u00f0 sj\u00e1 \u00ed ranns\u00f3knum; stress og \u00e1lag sem hafa \u00e1hrif \u00e1 \u00e1kve\u00f0in horm\u00f3n,\u201c segir Ragna.\r\n\r\nAndlegur slagur vi\u00f0 Alopecia<\/strong>\r\n\r\nAlopecia hefur engin \u00e1hrif \u00e1 daglegt l\u00edf R\u00f6gnu, h\u00fan er l\u00edkamlega fr\u00edsk og segir a\u00f0 h\u00fan finni helst fyrir \u00fev\u00ed a\u00f0 sj\u00fakd\u00f3murinn geti lagst \u00feungt \u00e1 andlegu hli\u00f0ina. \u201eM\u00e9r lei\u00f0 au\u00f0vita\u00f0 ekkert s\u00e9rstaklega vel \u00feegar \u00feetta byrja\u00f0i allt a\u00f0 gerast en m\u00e9r fannst \u00fea\u00f0 hj\u00e1lpa a\u00f0 \u00e9g var \u00f3l\u00e9tt. \u00c9g vissi a\u00f0 \u00e9g var \u00f3l\u00e9tt me\u00f0 str\u00e1k og \u00e9g gat svol\u00edti\u00f0 einbl\u00ednt \u00e1 \u00fea\u00f0,\u201c segir Ragna, en var h\u00fan ekkert hr\u00e6dd? \u201eJ\u00fa, \u00e9g var hr\u00e6dd af \u00fev\u00ed \u00e9g vissi ekki hva\u00f0 var a\u00f0 gerast og vissi ekki hvort \u00fea\u00f0 v\u00e6ri alvarlegt. \u00dea\u00f0 hr\u00e6ddi mig l\u00edka oft \u00e1 t\u00edmabili a\u00f0 \u00fea\u00f0 k\u00e6mi eitthva\u00f0 fyrir drenginn minn af \u00fev\u00ed m\u00e9r fannst l\u00edkaminn minn vera a\u00f0 breg\u00f0ast m\u00e9r og \u00fe\u00e1 var \u00e9g hr\u00e6dd um a\u00f0 l\u00edkaminn v\u00e6ri a\u00f0 breg\u00f0ast honum l\u00edka og \u00fea\u00f0 myndi hafa \u00e1hrif \u00e1 hann \u00ed m\u00f3\u00f0urkvi\u00f0i. Svo f\u00e9kk \u00e9g flj\u00f3tlega a\u00f0 vita a\u00f0 \u00fea\u00f0 var ekki raunin og sj\u00fakd\u00f3murinn haf\u00f0i engin l\u00edkamleg \u00e1hrif \u00e1 me\u00f0g\u00f6nguna.\u201c \u00de\u00e1 segir Ragna a\u00f0 \u00fea\u00f0 hafi vissulega veri\u00f0 l\u00e9ttir a\u00f0 f\u00e1 greininguna \u00e1 sj\u00fakd\u00f3mnum \u00fe\u00f3tt \u00fea\u00f0 hafi veri\u00f0 \u00e1fall. \u201e\u00c9g fann strax fyrir l\u00e9tti \u00feegar \u00e9g vissi a\u00f0 \u00feetta v\u00e6ru ekki st\u00f3rkostleg veikindi sem myndu hamla m\u00e9r l\u00edkamlega, \u00e9g \u00feurfti ekki a\u00f0 fara \u00ed eitthva\u00f0 pr\u00f3gram upp \u00e1 sp\u00edtala e\u00f0a \u00ed lyfjagj\u00f6f e\u00f0a neitt svolei\u00f0is og \u00fea\u00f0 var mikill l\u00e9ttir,\u201c segir Ragna en b\u00e6tir \u00fe\u00f3 vi\u00f0 a\u00f0 \u00fea\u00f0 hafi veri\u00f0 erfitt a\u00f0 s\u00e6tta sig vi\u00f0 a\u00f0 \u00feetta v\u00e6ri raunin. \u201e\u00dea\u00f0 \u00fe\u00fd\u00f0ir samt ekki a\u00f0 dvelja vi\u00f0 \u00fea\u00f0 lengi og \u00e9g var flj\u00f3t a\u00f0 \u00e1tta mig \u00e1 \u00fev\u00ed.\u201c\r\n\r\n[gallery columns=\"1\" size=\"medium\" ids=\"56031\"]\r\n\r\nSj\u00fakd\u00f3murinn er \u00f3\u00fatreiknanlegur<\/strong>\r\n\r\nAlopecia er \u00fer\u00edskiptur sj\u00fakd\u00f3mur og talar Ragna um fyrsta, anna\u00f0 og \u00feri\u00f0ja stig. S\u00e9rtu me\u00f0 \u00feri\u00f0ja stigs Alopecia eru n\u00e6r \u00f6ll l\u00edkamsh\u00e1r farin af og g\u00e6ti s\u00e1 h\u00e1rmissir veri\u00f0 varanlegur. Ragna segir ranns\u00f3knir \u00e1 sj\u00fakd\u00f3mnum s\u00fdna mismunandi ni\u00f0urst\u00f6\u00f0ur og sj\u00fakd\u00f3murinn s\u00e9 \u00fev\u00ed nokku\u00f0 \u00f3\u00fatreiknanlegur. \u201e\u00c9g hef b\u00e6\u00f0i lesi\u00f0 a\u00f0 h\u00e1rsekkirnir s\u00e9u \u00ed dvala og a\u00f0 \u00fea\u00f0 vanti \u00fe\u00e1 eitthva\u00f0 \u00ed l\u00edkamann til a\u00f0 vekja \u00fe\u00e1 til l\u00edfsins. En svo er l\u00edka tala\u00f0 um a\u00f0 \u00f3n\u00e6miskerfi\u00f0 r\u00e1\u00f0ist \u00e1 h\u00e1rsekkina, kerfi\u00f0 s\u00e9 \u00e1 yfirdrifi og haldi a\u00f0 h\u00e1rsekkirnir s\u00e9u v\u00edrus. \u00c9g var\u00f0 til d\u00e6mis fyrst alveg sk\u00f6ll\u00f3tt og \u00fea\u00f0 var bara enginn h\u00e1rv\u00f6xtur. Samkv\u00e6mt \u00fev\u00ed sem \u00e9g hef lesi\u00f0 m\u00e9r til um \u00e1tti a\u00f0 vera n\u00e6r \u00f3m\u00f6gulegt a\u00f0 h\u00e1ri\u00f0 myndi byrja a\u00f0 vaxa aftur, eftir algj\u00f6ran h\u00e1rmissi, en \u00fea\u00f0 eru d\u00e6mi um a\u00f0 \u00fea\u00f0 hafi gerst og \u00fea\u00f0 ger\u00f0ist hj\u00e1 m\u00e9r,\u201c segir Ragna. H\u00fan missti sj\u00e1lf allt h\u00e1ri\u00f0 \u00feegar h\u00fan var \u00f3l\u00e9tt af mi\u00f0judrengnum s\u00ednum, Mikael. \u00de\u00e1 var h\u00fan ekki me\u00f0 nein h\u00e1r nema augnh\u00e1r og segir h\u00fan a\u00f0 augnh\u00e1rin komi og fari \u00f6\u00f0ru hvoru. \u00deegar Ragna var svo \u00f3l\u00e9tt af Sebastian, yngsta str\u00e1knum s\u00ednum, f\u00f3r h\u00fan a\u00f0 taka eftir auknum h\u00e1rvexti og n\u00fana \u00feegar Sebastian er \u00e1tta m\u00e1na\u00f0a gamall er Ragna me\u00f0 t\u00f6luver\u00f0an h\u00e1rv\u00f6xt \u00e1 h\u00f6f\u00f0inu. Ef h\u00fan \u00e6tti sj\u00e1lf a\u00f0 giska \u00fe\u00e1 myndi h\u00fan halda a\u00f0 n\u00fana v\u00e6ru um 50-60% af h\u00e1rinu a\u00f0 koma til baka. En af \u00fev\u00ed a\u00f0 sj\u00fakd\u00f3murinn er svo \u00f3\u00fatreiknanlegur g\u00e6ti h\u00e1ri\u00f0 allt eins byrja\u00f0 a\u00f0 fara af aftur flj\u00f3tlega.\r\n\r\nBjarts\u00fdn vegna n\u00fds l\u00edft\u00e6knilyfs<\/strong>\r\n\r\nEn er eitthva\u00f0 h\u00e6gt a\u00f0 gera til \u00feess a\u00f0 hafa \u00e1hrif \u00e1 \u00feennan sj\u00fakd\u00f3m? \u201eSko, \u00e9g er ekki a\u00f0 taka nein lyf vi\u00f0 sj\u00fakd\u00f3mnum. En \u00e9g vonast til \u00feess a\u00f0 f\u00e1 a\u00f0 pr\u00f3fa lyf n\u00fana \u00ed haust sem \u00e9g veit a\u00f0 hefur haft j\u00e1kv\u00e6\u00f0 \u00e1hrif \u00e1 a\u00f0ra sem eru me\u00f0 \u00feennan sj\u00fakd\u00f3m. \u00deetta er sem sagt \u00e1kve\u00f0i\u00f0 l\u00edft\u00e6knilyf sem er a\u00f0 koma \u00e1 marka\u00f0, a\u00f0 \u00fev\u00ed er \u00e9g best veit, \u00e1 n\u00e6sta \u00e1ri og \u00fea\u00f0 er lyf sem \u00e1 a\u00f0 marka\u00f0ssetja s\u00e9rstaklega fyrir Alopecia sj\u00faklinga. M\u00e9r finnst \u00fea\u00f0 mj\u00f6g j\u00e1kv\u00e6tt \u00fev\u00ed sj\u00fakd\u00f3murinn er mj\u00f6g v\u00ed\u00f0t\u00e6kur og \u00e9g veit til \u00feess a\u00f0 einhverjir taka inn gigtarlyf sem hj\u00e1lpa \u00feeim a\u00f0 halda h\u00e1rlosinu \u00ed skefjum, \u00feannig a\u00f0 \u00fea\u00f0 er mj\u00f6g misjafnt hva\u00f0 virkar fyrir hvern og einn. \u00c9g er allavega mj\u00f6g spennt a\u00f0 f\u00e1 m\u00f6gulega a\u00f0 pr\u00f3fa \u00feetta l\u00edft\u00e6knilyf n\u00fana \u00ed haust,\u201c segir Ragna. H\u00fan hefur \u00fe\u00f3 sj\u00e1lf fundi\u00f0 \u00e1kve\u00f0inn me\u00f0alveg hj\u00e1 s\u00e9r hva\u00f0 var\u00f0ar matar\u00e6\u00f0i, hreyfingu og andlega l\u00ed\u00f0an og finnur a\u00f0 allt \u00feetta getur haft \u00e1hrif \u00e1 sj\u00fakd\u00f3minn. H\u00fan finnur til a\u00f0 mynda mikinn mun \u00e1 \u00fev\u00ed hvernig henni l\u00ed\u00f0ur og s\u00e9r breytingar \u00e1 h\u00e1rvextinum, bara me\u00f0 \u00fev\u00ed a\u00f0 hugsa vel um sig, hreyfa sig og bor\u00f0a \u00fea\u00f0 sem er r\u00e9tt fyrir hana.\r\n\r\n[gallery columns=\"1\" size=\"large\" ids=\"56027\"]\r\n\r\nTilfinninga\u00ferungin stund a\u00f0 raka h\u00e1ri\u00f0 af<\/strong>\r\n\r\n\u00deegar h\u00e1ri\u00f0 var or\u00f0i\u00f0 \u00feunnt og Ragna h\u00e6tt a\u00f0 geta fali\u00f0 skallablettina \u00e1kva\u00f0 h\u00fan a\u00f0 raka af s\u00e9r h\u00e1ri\u00f0. \u00deetta var \u00ed ma\u00ed 2019. \u201e\u00c9g var b\u00fain a\u00f0 hugsa \u00feetta \u00ed sm\u00e1 stund. Svo spyr ma\u00f0urinn minn mig hvort m\u00e9r muni ekki bara l\u00ed\u00f0a betur me\u00f0 a\u00f0 raka h\u00e1ri\u00f0 af \u00ed sta\u00f0 \u00feess a\u00f0 reyna a\u00f0 fela h\u00e1rlosi\u00f0. Vi\u00f0 \u00e1kve\u00f0um \u00fe\u00e1 a\u00f0 gera \u00fea\u00f0 saman og \u00fea\u00f0 var frekar tilfinninga\u00ferungin stund a\u00f0 taka \u00fea\u00f0 litla h\u00e1r sem eftir var,\u201c segir Ragna en h\u00fan og Ingvar \u00e1kv\u00e1\u00f0u eina kv\u00f6ldstundina a\u00f0 sno\u00f0a sig saman og sno\u00f0a um lei\u00f0 Benedikt son \u00feeirra sem \u00fe\u00e1 var eins og h\u00e1lfs \u00e1rs. \u201eM\u00e9r finnst \u00fea\u00f0 l\u00edka segja \u00f3tr\u00falega margt af \u00fev\u00ed a\u00f0 karlmenn eru l\u00edka me\u00f0 Alopecia en \u00fe\u00fa sp\u00e1ir aldrei \u00ed \u00fev\u00ed a\u00f0 \u00fea\u00f0 s\u00e9 eitthva\u00f0 a\u00f0 ef \u00fe\u00fa s\u00e9r\u00f0 sk\u00f6ll\u00f3ttan mann. Sk\u00f6ll\u00f3tt kona er miklu meira tab\u00fa. \u00deannig \u00fea\u00f0 var mj\u00f6g \u00e1hugavert \u00feegar vi\u00f0 r\u00f6ku\u00f0um \u00f6ll af okkur h\u00e1ri\u00f0; \u00e9g, ma\u00f0urinn minn og elsti str\u00e1kurinn okkar. \u00deeir voru aldrei spur\u00f0ir. \u00dea\u00f0 er n\u00e1tt\u00farulega bara e\u00f0lilegt a\u00f0 vera kr\u00fanuraka\u00f0ur e\u00f0a sno\u00f0a\u00f0ur karlma\u00f0ur en um lei\u00f0 og kona er b\u00fain a\u00f0 skafa af s\u00e9r h\u00e1ri\u00f0 \u00fe\u00e1 er \u00fea\u00f0 rosalega merkilegt, segir Ragna.\u201c\r\n\r\nIngvar, eiginma\u00f0ur R\u00f6gnu, hefur fr\u00e1 \u00feessari kv\u00f6ldstund veri\u00f0 sno\u00f0klipptur. \u201eHann er b\u00fainn a\u00f0 vera me\u00f0 m\u00e9r \u00ed \u00feessu n\u00fana \u00ed \u00ferj\u00fa \u00e1r og \u00fea\u00f0 er bara mj\u00f6g skemmtilegt. Oft sno\u00f0um vi\u00f0 okkur saman \u00e1 kv\u00f6ldin. Ingvar er l\u00edka svo upptekinn a\u00f0 hann hefur engan t\u00edma til a\u00f0 vera a\u00f0 hugsa um h\u00e1r,\u201c segir Ragna og glottir. H\u00fan b\u00e6tir svo brosandi vi\u00f0 \u201esvo eru paramyndirnar l\u00edka alltaf s\u00e6tari \u00feegar vi\u00f0 erum me\u00f0 eins klippingu.\u201c\r\n\r\n[gallery columns=\"1\" size=\"medium\" ids=\"56036\"]\r\n\r\n\u00c1kva\u00f0 strax a\u00f0 fara sk\u00f6ll\u00f3tt \u00fat \u00ed l\u00edfi\u00f0<\/strong>\r\n\r\n\u201e\u00c9g \u00e1kva\u00f0 strax a\u00f0 daginn eftir myndi \u00e9g bara fara \u00fat \u00ed l\u00edfi\u00f0 sk\u00f6ll\u00f3tt. \u00c9g \u00e6tla\u00f0i ekkert a\u00f0 reyna a\u00f0 fela \u00fea\u00f0 neitt. \u00c9g \u00e6tla\u00f0i bara a\u00f0 vera sk\u00f6ll\u00f3tt og m\u00e6tti meira a\u00f0 segja beint \u00ed vinnuna daginn eftir. \u00de\u00e1 var \u00e9g a\u00f0 vinna \u00e1 mj\u00f6g skemmtilegum vinnusta\u00f0 me\u00f0 unglingum me\u00f0 s\u00e9r\u00fearfir, \u00feannig a\u00f0 \u00fe\u00fa getur r\u00e9tt \u00edmynda\u00f0 \u00fe\u00e9r hvernig var a\u00f0 m\u00e6ta bara \u00feanga\u00f0 einn daginn sk\u00f6ll\u00f3tt,\u201c segir Ragna hl\u00e6jandi og \u00fdjar a\u00f0 \u00fev\u00ed a\u00f0 h\u00fan hafi \u00fear fengi\u00f0 alls konar athugasemdir. H\u00fan \u00edtrekar svo a\u00f0 \u00fea\u00f0 hafi hj\u00e1lpa\u00f0 henni miki\u00f0 a\u00f0 fara strax \u00fat fyrsta daginn og sj\u00e1 a\u00f0 \u00feetta v\u00e6ri n\u00fa hennar n\u00fdja l\u00edf.\r\n\r\n\u00deennan fyrsta dag f\u00e9kk h\u00fan miki\u00f0 af augngotum og spurningum og f\u00f3lk var\u00f0 hissa a\u00f0 sj\u00e1 hana allt \u00ed einu me\u00f0 ekkert h\u00e1r. H\u00fan setti svo eiginlega strax inn n\u00fdja fors\u00ed\u00f0umynd af s\u00e9r sk\u00f6ll\u00f3ttri \u00e1 samf\u00e9lagsmi\u00f0la sem leiddi til mikils umtals og segir h\u00fan a\u00f0 f\u00f3lk hafi veri\u00f0 forviti\u00f0. \u201e\u00c9g f\u00e9kk miki\u00f0 af spurningum um hvort \u00e9g v\u00e6ri veik og \u00e9g skil alveg a\u00f0 \u00fea\u00f0 s\u00e9 \u00fea\u00f0 fyrsta sem f\u00f3lki dettur \u00ed hug af \u00fev\u00ed a\u00f0 f\u00f3lk veit l\u00edti\u00f0 sem ekkert um \u00feennan sj\u00fakd\u00f3m en \u00fea\u00f0 er alveg h\u00e6gt a\u00f0 vera sk\u00f6ll\u00f3ttur \u00e1n \u00feess a\u00f0 vera \u00ed lyfjame\u00f0fer\u00f0. En j\u00e1 \u00e9g f\u00e9kk miki\u00f0 af spurningum bara sj\u00e1lf \u00ed gegnum samf\u00e9lagsmi\u00f0la og \u00e9g held a\u00f0 f\u00f3lki finnist bara au\u00f0velt a\u00f0 spyrja a\u00f0ra svona \u00ed gegnum s\u00edmann. Svo var f\u00f3lki\u00f0 mitt l\u00edka oft spurt hva\u00f0 v\u00e6ri a\u00f0 hrj\u00e1 mig.\u201c - Og hvernig fannst \u00fe\u00e9r \u00feetta umtal? \u201e\u00deetta var alveg \u00f3\u00fe\u00e6gilegt en \u00e9g var og er samt svo tilb\u00fain a\u00f0 \u00fatsk\u00fdra \u00feetta. \u00c9g vil frekar a\u00f0 f\u00f3lk spyrji mig \u00fat \u00ed \u00feetta en a\u00f0 \u00fea\u00f0 tali \u00e1 bakvi\u00f0 mig eins og \u00fea\u00f0 s\u00e9 eitthva\u00f0 a\u00f0. M\u00e9r fannst eiginlega erfi\u00f0ara \u00feegar f\u00f3lk \u00e1\u00e6tla\u00f0i a\u00f0 \u00fea\u00f0 v\u00e6ri eitthva\u00f0 meira a\u00f0 hj\u00e1 m\u00e9r og spur\u00f0i mig ekki beint, heldur einhvern annan.\r\n\r\nVir\u00f0ingarvert \u00feegar f\u00f3lk notar h\u00e1rkollur<\/strong>\r\n\r\nRagna hefur pr\u00f3fa\u00f0 h\u00e1rkollur en \u00fea\u00f0 er ekki fyrir hana, henni finnst \u00fe\u00e6r \u00f3\u00fe\u00e6gilegar og er mun me\u00f0vita\u00f0ri um sig \u00fe\u00e1 en annars. \u201eF\u00f3lk veit a\u00f0 \u00e9g er ekki me\u00f0 h\u00e1r en samt var \u00e9g a\u00f0 setja upp h\u00e1r og m\u00e9r lei\u00f0 ekki betur \u00feannig. M\u00e9r fannst \u00e9g bara n\u00e1tt\u00farulegri og l\u00edta betur \u00fat sk\u00f6ll\u00f3tt. \u00deannig \u00fea\u00f0 var bara ekki minn tebolli. En \u00fea\u00f0 eru mj\u00f6g margir sem nota h\u00e1rkollur og m\u00e9r finnst \u00fea\u00f0 bara vir\u00f0ingarvert af \u00fev\u00ed a\u00f0 \u00e9g get \u00fea\u00f0 ekki, m\u00e9r finnst \u00fea\u00f0 svo \u00f3\u00fe\u00e6gilegt. \u00c9g nota alveg sl\u00e6\u00f0ur og h\u00fafur en oft er \u00e9g l\u00edka bara \u00e1 skallanum,\u201c segir Ragna.\r\n\r\n[gallery columns=\"1\" size=\"large\" ids=\"56028\"]\r\n\r\nSk\u00f6ll\u00f3tta stj\u00fapan<\/strong>\r\n\r\nUna Bj\u00f6rg stj\u00fapd\u00f3ttir R\u00f6gnu var 13 \u00e1ra \u00feegar Ragna greinist me\u00f0 Alopecia og rakar af s\u00e9r \u00fea\u00f0 litla h\u00e1r sem eftir var. H\u00fan segir \u00fea\u00f0 hafa veri\u00f0 \u00e1hugavert a\u00f0 fylgjast me\u00f0 vi\u00f0br\u00f6g\u00f0um Unu og jafnaldra hennar vi\u00f0 \u00feessari breytingu. \u201e\u00c9g er svo fegin a\u00f0 \u00feessi n\u00fdja kynsl\u00f3\u00f0 er svo \u00f3tr\u00falega m\u00f3tt\u00e6kileg fyrir breytingum og a\u00f0 vera bara alls konar. Una h\u00e9lt n\u00e1tt\u00farulega fyrst a\u00f0 \u00e9g v\u00e6ri veik og \u00fea\u00f0 var kannski d\u00e1l\u00edti\u00f0 erfitt a\u00f0 \u00fatsk\u00fdra fyrir henni a\u00f0 \u00feetta v\u00e6ri ekkert alvarlegt. En h\u00fan vandist \u00feessu strax og allar vinkonur hennar l\u00edka og \u00feetta hefur ekki veri\u00f0 neitt m\u00e1l. \u00c9g var\u00f0 \u00ed rauninni bara strax sk\u00f6ll\u00f3tta stj\u00fapan og ekkert meira um \u00fea\u00f0 a\u00f0 segja.\u201c\r\n\r\nL\u00edka kostur a\u00f0 vera ekki me\u00f0 h\u00e1r<\/strong>\r\n\r\nRagna er fyrir l\u00f6ngu b\u00fain a\u00f0 s\u00e6tta sig vi\u00f0 h\u00e1rmissinn. \u201e\u00c9g held a\u00f0 \u00e9g s\u00e9 \u00ed raun bara meira \u00feakkl\u00e1t fyrir \u00feetta ferli allt saman heldur en eitthva\u00f0 anna\u00f0. Af \u00fev\u00ed \u00fe\u00fa l\u00e6rir svo miki\u00f0 \u00e1 styrkleika \u00fe\u00edna \u00feegar \u00fe\u00fa lendir \u00ed einhverju sem \u00fe\u00fa r\u00e6\u00f0ur ekki vi\u00f0. \u00de\u00e1 s\u00e9r\u00f0u hva\u00f0 \u00fe\u00fa ert sterk e\u00f0a sterkur. \u00deegar \u00e9g f\u00f3r a\u00f0 hugsa \u00feetta \u00feannig, \u00fe\u00e1 var \u00e9g bara frekar s\u00e1tt,\u201c segir Ragna. Svo er \u00fea\u00f0 l\u00edka kostur a\u00f0 \u00feurfa aldrei a\u00f0 hugsa um h\u00e1ri\u00f0 \u00e1 s\u00e9r, \u00fea\u00f0 sparar b\u00e6\u00f0i peninga og t\u00edma. \u201eJ\u00e1 m\u00e9r finnst \u00fea\u00f0 mj\u00f6g \u00fe\u00e6gilegt a\u00f0 \u00feurfa ekki a\u00f0 vesenast me\u00f0 h\u00e1ri\u00f0 \u00e1 m\u00e9r, s\u00e9rstaklega \u00feegar \u00e9g \u00e1 svona m\u00f6rg b\u00f6rn. \u00c9g fer til d\u00e6mis ekki \u00ed klippingu \u00feannig a\u00f0 au\u00f0vita\u00f0 fer \u00e9g \u00ed neglur og nudd og get leyft m\u00e9r \u00fea\u00f0 \u00feannig \u00fea\u00f0 er alveg kostur,\u201c segir Ragna og b\u00e6tir vi\u00f0. \u201eEins og \u00e9g segi var \u00e9g mj\u00f6g flj\u00f3t a\u00f0 venjast \u00fev\u00ed a\u00f0 vera sk\u00f6ll\u00f3tt og \u00e9g er l\u00edka stolt af \u00fev\u00ed a\u00f0 hafa vanist \u00feessu svona flj\u00f3tt. Svo hef \u00e9g veri\u00f0 a\u00f0 \u00fatsk\u00fdra \u00feennan blessa\u00f0a sj\u00fakd\u00f3m fyrir m\u00f6rgum \u00fev\u00ed \u00feetta er sj\u00fakd\u00f3mur sem f\u00e1ir vita af en er \u00fe\u00f3 nokku\u00f0 algengur,\u201c segir Ragna en samkv\u00e6mt uppl\u00fdsingum fr\u00e1 Al\u00fej\u00f3\u00f0a Alopecia samt\u00f6kunum (NAAF) eru um 2% jar\u00f0arb\u00faa sem f\u00e1 einkenni \u00feessa sj\u00fakd\u00f3ms einhvern t\u00edmann \u00e1 l\u00edfslei\u00f0inni. Ragna segist l\u00edka vera \u00e1n\u00e6g\u00f0 me\u00f0 vitundarvakninguna sem hefur aukist s\u00ed\u00f0ustu \u00e1r \u00fati \u00ed heimi og l\u00edka h\u00e9r \u00e1 \u00cdslandi, s\u00e9rstaklega eftir mikla fj\u00f6lmi\u00f0laumfj\u00f6llun um Alopecia \u00ed fyrrasumar.\r\n\r\n\u201e\u00dea\u00f0 er fullt af konum me\u00f0 \u00feetta, fullt\u201c<\/strong>\r\n\r\nSumari\u00f0 2021 f\u00f3r bla\u00f0ama\u00f0ur Mannl\u00edfs \u00e1 st\u00fafana og leita\u00f0i uppi konur sem eru me\u00f0 Alopecia. Bla\u00f0ama\u00f0urinn t\u00f3k vi\u00f0t\u00f6l vi\u00f0 konurnar og skrifa\u00f0i miki\u00f0 um sj\u00fakd\u00f3minn \u00fea\u00f0 sumar. \u00cd september var svo vitundarvakningarm\u00e1nu\u00f0ur Alopecia og \u00fe\u00e1 hittust allar konurnar sem h\u00f6f\u00f0u veri\u00f0 \u00ed umfj\u00f6llun Mannl\u00edfs um sumari\u00f0 og skrifu\u00f0 var s\u00e9r grein um \u00feann hitting. \u201e\u00dea\u00f0 var ekkert b\u00fai\u00f0 a\u00f0 tala um Alopecia \u00ed fleiri \u00e1r og f\u00e1ir vissu af sj\u00fakd\u00f3mnum og \u00e9g finn n\u00fana s\u00e9rstaklega eftir alla umfj\u00f6llunina s\u00ed\u00f0asta sumar a\u00f0 f\u00f3lk er me\u00f0vita\u00f0ra um a\u00f0 \u00fe\u00f3tt \u00e9g s\u00e9 sk\u00f6ll\u00f3tt s\u00e9 ekki endilega neitt alvarlegt a\u00f0, heldur s\u00e9 \u00feetta sj\u00e1lfsofn\u00e6mi. Og \u00fea\u00f0 er fullt af konum me\u00f0 \u00feetta, fullt,\u201c segir Ragna.\r\n\r\nBaldvin<\/strong>\r\n\r\n\u00c1 Facebook er stu\u00f0ningsh\u00f3pur fyrir f\u00f3lk me\u00f0 Alopecia. H\u00f3purinn heitir Baldvin, sem er \u00e1kve\u00f0i\u00f0 or\u00f0agr\u00edn \u00fev\u00ed enska or\u00f0i\u00f0 bald \u00fe\u00fd\u00f0ir sk\u00f6ll\u00f3ttur og g\u00e6ti \u00fe\u00fd\u00f0ing \u00e1 nafninu \u00fe\u00e1 veri\u00f0 \u201ask\u00f6ll\u00f3ttir vinir\u2018. H\u00f3purinn hefur veri\u00f0 a\u00f0 vakna til l\u00edfsins og segist Ragna vera b\u00fain a\u00f0 kynnast nokkrum konum \u00ed gegnum h\u00f3pinn en l\u00edka \u00e1 \u00f6\u00f0rum vettvangi. A\u00f0spur\u00f0 segist h\u00fan finna fyrir stu\u00f0ning a\u00f0 vita af \u00f6\u00f0rum sem eru a\u00f0 takast \u00e1 vi\u00f0 sama verkefni og h\u00fan. \u201eMa\u00f0ur finnur a\u00f0 ma\u00f0ur er ekki Palli einn \u00ed heiminum \u00fe\u00f3tt \u00fea\u00f0 s\u00e9 kannski enginn \u00ed manns innsta hring me\u00f0 sama sj\u00fakd\u00f3m. \u00deegar \u00e9g f\u00f3r inn \u00ed Facebookh\u00f3pinn s\u00e1 \u00e9g hva\u00f0 Alopecia er miklu algengari en f\u00f3lk \u00e1ttar sig \u00e1 og \u00e9g \u00e1tta\u00f0i mig \u00e1 sj\u00e1lf.\r\n\r\n[gallery columns=\"2\" size=\"medium\" ids=\"56034,56033\"]\r\n\r\nTekur miki\u00f0 \u00e1 s\u00e1lina a\u00f0 fela hvernig ma\u00f0ur er<\/strong>\r\n\r\nStuttu eftir a\u00f0 Ragna rakar af s\u00e9r h\u00e1ri\u00f0 \u00e1kve\u00f0ur Ingvar eiginma\u00f0ur hennar a\u00f0 m\u00e1la mynd af henni sk\u00f6ll\u00f3ttri. Ingvar er \u00feekktur listm\u00e1lari og \u00feegar hann setti inn mynd af m\u00e1lverkinu \u00e1 samf\u00e9lagsmi\u00f0lana s\u00edna hr\u00fagu\u00f0ust inn skilabo\u00f0 \u00fear fr\u00e1 konum me\u00f0 Alopecia. \u201eMargar \u00feeirra voru bara a\u00f0 segja vi\u00f0 hann hva\u00f0 \u00feetta v\u00e6ri falleg mynd og a\u00f0 \u00fe\u00e6r vildu a\u00f0 \u00fe\u00e6r hef\u00f0u kjark \u00ed a\u00f0 vera sk\u00f6ll\u00f3ttar \u00fati me\u00f0al f\u00f3lks. \u00deetta var bara fullt af konum sem gengu me\u00f0 sl\u00e6\u00f0ur e\u00f0a h\u00e1rkollur og vi\u00f0 vorum b\u00e6\u00f0i mj\u00f6g hissa a\u00f0 sj\u00e1 hva\u00f0 \u00fea\u00f0 voru virkilega margar konur sem voru alveg h\u00e1rlausar. Og l\u00edka konur sem voru me\u00f0 bletti h\u00e9r og \u00fear, ekki endilega b\u00fanar a\u00f0 missa allt h\u00e1ri\u00f0, og \u00ed fleiri \u00e1r b\u00fanar a\u00f0 reyna a\u00f0 fela skallablettina. \u00dea\u00f0 tekur l\u00edka miki\u00f0 \u00e1 s\u00e1lina; a\u00f0 vera alltaf a\u00f0 fela hvernig ma\u00f0ur er. \u00dea\u00f0 er d\u00e1l\u00edti\u00f0 hart. S\u00e9rstaklega \u00ed lengri t\u00edma,\u201c segir Ragna og m\u00e1li\u00f0 er henni auglj\u00f3slega hugleiki\u00f0.\r\n\r\n\u201e\u00c9g er a\u00f0 tala vi\u00f0 \u00feig, er \u00fea\u00f0 ekki\u201c<\/strong>\r\n\r\nHva\u00f0 \u00e6tlar Ragna a\u00f0 gera \u00ed tilefni septemberm\u00e1na\u00f0ar til a\u00f0 vekja athygli \u00e1 Alopecia? \u201e\u00c9g er a\u00f0 tala vi\u00f0 \u00feig, er \u00fea\u00f0 ekki!\u201c segir Ragna og hl\u00e6r. H\u00fan b\u00e6tir vi\u00f0 a\u00f0 \u00fea\u00f0 s\u00e9 ekki s\u00e9rlega miki\u00f0 \u00ed gangi \u00e1 \u00cdslandi, \u00fea\u00f0 s\u00e9u til a\u00f0 mynda engir skipulag\u00f0ir hittingar e\u00f0a vi\u00f0bur\u00f0ir. Ragna fylgist \u00fe\u00f3 miki\u00f0 me\u00f0 Alopecia samf\u00e9laginu \u00e1 samf\u00e9lagsmi\u00f0lum en \u00fati \u00ed heimi er mj\u00f6g virkt starf. \u00cd Bretlandi er til d\u00e6mis risast\u00f3rt samf\u00e9lag og \u00fear eru skipulag\u00f0ir hittingar. \u201e\u00deau eru me\u00f0 boli og skr\u00fa\u00f0g\u00f6ngur og alls konar og \u00e9g s\u00e9 \u00fea\u00f0 bara allt \u00e1 samf\u00e9lagsmi\u00f0lum. \u00dea\u00f0 er miklu meira um svona starf \u00fati \u00ed heimi heldur en er h\u00e9r en kannski \u00e6tti ma\u00f0ur bara a\u00f0 keyra svona starf \u00ed gang h\u00e9r heima, \u00fea\u00f0 er kannski ekki svo vitlaust,\u201c segir Ragna en h\u00fan er vi\u00f0b\u00fain \u00fev\u00ed a\u00f0 sj\u00e1 og lesa miki\u00f0 af s\u00f6gum f\u00f3lks me\u00f0 Alopecia \u00e1 n\u00e6stu vikum. \u201eF\u00f3lk segir oft s\u00f6gurnar s\u00ednar \u00ed \u00feessum m\u00e1nu\u00f0i og foreldrar barna me\u00f0 Alopecia deila gjarnan s\u00f6gunum \u00feeirra. \u00c9g er a\u00f0 fylgja m\u00f6rgum svona a\u00f0g\u00f6ngum \u00e1 Instagram \u00feannig \u00fea\u00f0 kemur allavega miki\u00f0 inn \u00e1 Instagrammi\u00f0 hj\u00e1 m\u00e9r n\u00fana \u00e1 n\u00e6stunni,\u201c segir Ragna.\r\n\r\n[gallery columns=\"1\" size=\"large\" ids=\"56032\"]\r\n\r\nMikilv\u00e6gt a\u00f0 sj\u00e1 sk\u00f6ll\u00f3ttar fyrirs\u00e6tur<\/strong>\r\n\r\n\u00dea\u00f0 sem Ragna er kannski \u00e1n\u00e6g\u00f0ust me\u00f0 hva\u00f0 var\u00f0ar vitundarvakningu er a\u00f0 n\u00fana eru fyrirt\u00e6ki farin a\u00f0 r\u00e1\u00f0a inn fj\u00f6lbreyttari fyrirs\u00e6tur til a\u00f0 augl\u00fdsa varning. \u00dear nefnir h\u00fan \u00e1kve\u00f0i\u00f0 sundfatafyrirt\u00e6ki \u00ed Bandar\u00edkjunum sem r\u00e9\u00f0i til s\u00edn fyrirs\u00e6tu sem er me\u00f0 Alopecia. \u201eH\u00fan er sem sagt fyrsta sk\u00f6ll\u00f3tta m\u00f3deli\u00f0 sem \u00e9g hef s\u00e9\u00f0 hj\u00e1 sundfatal\u00ednum og h\u00fan er alveg geggju\u00f0, svo \u00f3tr\u00falega flott! Svo versla \u00e9g l\u00edka miki\u00f0 \u00e1 Asos og n\u00fana n\u00fdlega komu inn sk\u00f6ll\u00f3ttar fyrirs\u00e6tur \u00fear. \u00deetta er alveg \u00f3tr\u00falega mikilv\u00e6gt fyrir okkur sem erum me\u00f0 \u00feennan sj\u00fakd\u00f3m \u00fev\u00ed \u00feetta hj\u00e1lpar vitundarvakningunni, bara \u00fea\u00f0 a\u00f0 f\u00f3lk sj\u00e1i meira. M\u00e9r fannst \u00f3tr\u00falega gaman a\u00f0 sj\u00e1 \u00feetta og \u00feetta hj\u00e1lpar m\u00e9r pers\u00f3nulega l\u00edka \u00fev\u00ed eftir a\u00f0 \u00e9g missti h\u00e1ri\u00f0 \u00fe\u00e1 hugsa \u00e9g meira um hvernig \u00e9g l\u00edt \u00fat \u00ed \u00feessu og hinu. \u00deegar \u00fe\u00fa ert me\u00f0 h\u00e1r \u00fe\u00e1 getur \u00fe\u00fa hugsa\u00f0 a\u00f0 \u00fe\u00fa ver\u00f0ir t.d. me\u00f0 krulla\u00f0 h\u00e1r \u00feegar \u00fe\u00fa ert \u00ed \u00feessum kj\u00f3l og getur sett h\u00e1ri\u00f0 upp vi\u00f0 annan kj\u00f3l. En \u00feegar \u00fe\u00fa ert sk\u00f6ll\u00f3tt \u00fe\u00e1 gerir \u00fe\u00fa engar krullur, \u00fe\u00fa bara m\u00e1lar \u00feig og fer\u00f0 \u00ed kj\u00f3linn,\u201c segir Ragna en h\u00fan haf\u00f0i alltaf mj\u00f6g gaman af \u00fev\u00ed a\u00f0 krulla \u00e1 s\u00e9r h\u00e1ri\u00f0 og dunda s\u00e9r vi\u00f0 a\u00f0 grei\u00f0a \u00fea\u00f0 og gera \u00fea\u00f0 flott. \u201eSvo er \u00e9g n\u00fana b\u00fain a\u00f0 missa h\u00e1ri\u00f0 og \u00e9g er ekki a\u00f0 fara a\u00f0 gera neinar krullur. \u00dea\u00f0 er d\u00e1l\u00edti\u00f0 skr\u00edti\u00f0, en ekkert m\u00e1l engu a\u00f0 s\u00ed\u00f0ur.\u201c Bla\u00f0ama\u00f0ur sk\u00fdtur \u00fe\u00e1 inn \u00ed a\u00f0 h\u00fan hafi \u00ed \u00feokkab\u00f3t eignast \u00ferj\u00e1 str\u00e1ka. \u00dea\u00f0 er stutt \u00ed h\u00famorinn og gle\u00f0ina hj\u00e1 R\u00f6gnu og h\u00fan svarar um h\u00e6l a\u00f0 h\u00fan l\u00e1ti syni s\u00edna safna h\u00e1ri svo h\u00fan geti greitt \u00fea\u00f0 og d\u00falla\u00f0 \u00ed \u00fev\u00ed.\r\n\r\nErfi\u00f0ast a\u00f0 sakna<\/strong>\r\n\r\nRagna ber h\u00f6fu\u00f0i\u00f0 h\u00e1tt og hefur tekist \u00e1 vi\u00f0 \u00feetta verkefni me\u00f0 j\u00e1kv\u00e6\u00f0u hugarfari og h\u00famor \u00fe\u00f3tt sj\u00fakd\u00f3murinn hafi lagst \u00e1 andlegu hli\u00f0 hennar. Eiginma\u00f0ur hennar er hennar sto\u00f0 og stytta og fj\u00f6lskyldul\u00edfi\u00f0 er henni afar k\u00e6rt. H\u00fan er gl\u00f6\u00f0 og \u00feakkl\u00e1t fyrir a\u00f0 sj\u00fakd\u00f3murinn h\u00e1i henni ekki \u00ed daglegu l\u00edfi en h\u00fan syrgir h\u00e1ri\u00f0 sem h\u00fan haf\u00f0i. \u201e\u00dea\u00f0 sem var erfi\u00f0ast \u00ed \u00feessu fyrir mig var kannski ekki \u00e1falli\u00f0 vi\u00f0 a\u00f0 missa h\u00e1ri\u00f0 og a\u00f0 \u00fea\u00f0 v\u00e6ri a\u00f0 gerast heldur var \u00fea\u00f0 kannski frekar s\u00f6knu\u00f0urinn. \u00c9g held a\u00f0 \u00fea\u00f0 s\u00e9 b\u00fai\u00f0 a\u00f0 vera \u00fea\u00f0 erfi\u00f0asta, a\u00f0 sakna. \u00c9g var l\u00edka bara, sorr\u00fd, me\u00f0 fallegasta h\u00e1r \u00ed heimi, \u00fea\u00f0 var svo s\u00edtt og \u00feykkt og gordj\u00f6ss og \u00e9g kann a\u00f0 meta \u00fea\u00f0 svo miki\u00f0 n\u00fana \u00feegar \u00e9g hef \u00fea\u00f0 ekki lengur. Og s\u00f6knu\u00f0urinn er kannski l\u00edka svona mikill \u00fev\u00ed \u00e9g veit a\u00f0 \u00e9g mun l\u00edklega aldrei f\u00e1 h\u00e1ri\u00f0 aftur. \u00de\u00e1 mun \u00e9g aldrei f\u00e1 a\u00f0 gera \u00fea\u00f0 sem m\u00e9r fannst svo skemmtilegt, a\u00f0 hugsa um h\u00e1ri\u00f0, krulla \u00fea\u00f0 og gera \u00fea\u00f0 fallegt,\u201c segir Ragna og er or\u00f0in ansi meyr, h\u00fan hristir \u00fea\u00f0 \u00fe\u00f3 flj\u00f3tt af s\u00e9r og b\u00e6tir vi\u00f0. \u201eEn \u00fea\u00f0 er bara eins og \u00fea\u00f0 er, l\u00edfi\u00f0 kemur til manns og ma\u00f0ur r\u00e6\u00f0ur ekki alltaf yfir \u00f6llu.\u201c\r\n\r\nVill vinna \u00ed velfer\u00f0arkerfinu<\/strong>\r\n\r\nRagna er sem fyrr segir nemi \u00ed f\u00e9lagsr\u00e1\u00f0gj\u00f6f vi\u00f0 H\u00e1sk\u00f3la \u00cdslands. H\u00fan hefur mikinn \u00e1huga \u00e1 velfer\u00f0arkerfi \u00cdslands og s\u00e9rstaklega \u00fev\u00ed sem sn\u00fdr a\u00f0 b\u00f6rnum og s\u00e9r fyrir s\u00e9r a\u00f0 vinna vi\u00f0 eitthva\u00f0 tengt \u00fev\u00ed \u00ed n\u00e1inni framt\u00ed\u00f0. \u201e\u00c9g byrja\u00f0i a\u00f0 l\u00e6ra vi\u00f0skiptafr\u00e6\u00f0i \u00ed h\u00e1sk\u00f3lanum. Ma\u00f0ur vinkonu minnar var hins vegar a\u00f0 vinna hj\u00e1 Barnavernd og m\u00e9r fannst \u00fea\u00f0 svo \u00f3tr\u00falega \u00e1hugavert a\u00f0 \u00e9g var alltaf a\u00f0 spyrja hann \u00fat \u00ed vinnuna. \u00cd samt\u00f6lum m\u00ednum vi\u00f0 hann kvikna\u00f0i bara mikill \u00e1hugi hj\u00e1 m\u00e9r \u00e1 velfer\u00f0arkerfum og \u00fe\u00e1 s\u00e9rstaklega \u00fev\u00ed sem kemur a\u00f0 b\u00f6rnum. Hann benti m\u00e9r \u00e1 f\u00e9lagsr\u00e1\u00f0gjafarn\u00e1mi\u00f0 og \u00feegar \u00e9g las n\u00e1msl\u00fdsinguna \u00e1 \u00fev\u00ed n\u00e1mi \u00fe\u00e1 fannst m\u00e9r h\u00fan svo spennandi og allt \u00ed henni \u00e1tti vel vi\u00f0 mig svo \u00e9g \u00e1kva\u00f0 a\u00f0 skr\u00e1 mig.\u201c F\u00e9lagsr\u00e1\u00f0gj\u00f6f er a\u00f0 s\u00f6gn R\u00f6gnu mj\u00f6g v\u00ed\u00f0t\u00e6k fr\u00e6\u00f0igrein og b\u00ed\u00f0ur upp \u00e1 margt \u00f3l\u00edkan starfsvettvang. \u201e\u00c9g myndi vilja vinna a\u00f0 einhverju sem sn\u00fdr a\u00f0 b\u00f6rnum og \u00feeirra velfer\u00f0 en m\u00e9r finnst l\u00edka \u00e1hugaver\u00f0 til d\u00e6mis samskipti hj\u00f3na og para og \u00e9g held \u00e9g v\u00e6ri l\u00edka til \u00ed a\u00f0 sko\u00f0a \u00fea\u00f0, einhvers konar hj\u00f3nar\u00e1\u00f0gj\u00f6f. \u00deannig \u00fea\u00f0 tvennt kveikti \u00e1huga minn \u00e1 a\u00f0 byrja \u00ed f\u00e9lagsr\u00e1\u00f0gj\u00f6finni,\u201c segir Ragna.\r\n\r\n[gallery columns=\"1\" size=\"large\" ids=\"56030\"]\r\n\r\nHeldur \u00e1fram a\u00f0 lifa \u00ed s\u00e1tt og gle\u00f0i<\/strong>\r\n\r\n\u00cd dag er Ragna \u00ed f\u00e6\u00f0ingarorlofi me\u00f0 Sebastian \u00de\u00f3r. H\u00fan \u00e6tlar a\u00f0 nj\u00f3ta \u00feess a\u00f0 vera me\u00f0 hann heima \u00fat \u00e1ri\u00f0 og heldur svo \u00e1fram me\u00f0 h\u00e1sk\u00f3lan\u00e1mi\u00f0 \u00ed jan\u00faar. \u00deegar Ragna er innt eftir framt\u00ed\u00f0arpl\u00f6num kemur \u00e1 hana sm\u00e1 f\u00e1t en svo svarar h\u00fan. \u201eVi\u00f0 fj\u00f6lskyldan erum \u00e1 n\u00e6stu m\u00e1nu\u00f0um a\u00f0 fara a\u00f0 flytja og koma okkur fyrir \u00ed \u00f6\u00f0ru hverfi. Svo bara \u00e6tla \u00e9g a\u00f0 halda \u00e1fram a\u00f0 lifa \u00ed s\u00e1tt og gle\u00f0i. \u00c9g held a\u00f0 \u00fea\u00f0 s\u00e9 bara \u00fea\u00f0 eina sem ma\u00f0ur getur plana\u00f0. Getur ma\u00f0ur plana\u00f0 eitthva\u00f0 \u00ed \u00feessu l\u00edfi fyrir utan \u00fea\u00f0? J\u00e1 og kannski n\u00e1 markmi\u00f0um s\u00ednum og elta hamingjuna. \u00dea\u00f0 eru m\u00edn pl\u00f6n,\u201c segir Ragna a\u00f0 lokum og l\u00edfsgle\u00f0in leynir s\u00e9r ekki hj\u00e1 \u00feessari kjarnakonu.\r\n\r\n \r\n\r\n \r\n\r\n ","order":0,"get_parent":{},"attributes":[],"attributesType":{"content":{"type":"string","source":"html"}},"dynamicContent":""}]

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